Place Bonding in Children's Hospice Care- a qualitative study

dc.cclicenceCC-BY-NCen
dc.contributor.authorDunbar, Helenaen
dc.contributor.authorCarter, Bernieen
dc.contributor.authorBrown, Jayneen
dc.date.acceptance2018-07-25en
dc.date.accessioned2018-09-04T14:18:36Z
dc.date.available2018-09-04T14:18:36Z
dc.date.issued2018-08-14
dc.descriptionThe file attached to this record is the author's final peer reviewed version. The Publisher's final version can be found by following the DOI link.en
dc.description.abstractBackground Limited knowledge exists of parents’ perceptions and experiences of children’s hospices and how these contribute to the varied access and uptake of services. Aim This study aimed to explore parents’ perspectives and experiences of a hospice, to understand the barriers and/or facilitators to accessing a hospice, and what characteristics parents wanted from hospice provision. Methods A two-phase qualitative study underpinned by a constructivist grounded theory methodology was employed. Phase 1 used focus groups to collect data from parents of children already accessing the hospice (n=24). Phase 2 used in-depth semi-structured interviews with parents of children who did not use the hospice (n=7) and with parents who had previous experience of using a hospice (n=7). Results A grounded theory of place bonding was developed which illustrates the cognitive journey taken by parents of children with life-limiting conditions considering/receiving hospice care for their child. Conclusions Finding a place where they belonged and felt at ‘home’ made the decision to accept help in caring for their child with a life-limiting condition more acceptable. The theory of place bonding offers children’s hospices a new perspective from which to view how parents access, accept and build relationships at the hospice.en
dc.funderN/Aen
dc.identifier.citationDunbar H, Carter, B. and Brown, J. (2018) Place Bonding in children's hopsice care. BMJ Supportive & Palliative Care en
dc.identifier.doihttps://doi.org/10.1136/bmjspcare-2018-001543
dc.identifier.issn2045-435X
dc.identifier.urihttp://hdl.handle.net/2086/16533
dc.language.isoenen
dc.peerreviewedYesen
dc.projectidN/Aen
dc.publisherBMJen
dc.researchinstituteInstitute of Health, Health Policy and Social Careen
dc.subjectchildrenen
dc.subjecthospiceen
dc.subjectplace bondingen
dc.titlePlace Bonding in Children's Hospice Care- a qualitative studyen
dc.typeArticleen

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