Redefining the patient-carer model at end of life

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dc.cclicenceCC-BY-NCen
dc.contributor.authorde Vries, Kayen
dc.contributor.authorCoombs, Maureen A.en
dc.contributor.authorParker, R.en
dc.date.acceptance2016-07-21en
dc.date.accessioned2018-11-06T11:01:00Z
dc.date.available2018-11-06T11:01:00Z
dc.date.issued2016-07-21
dc.descriptionThe author's final peer reviewed version can be found by following the URI link. The Publisher's final version can be found by following the DOI link.en
dc.description.abstractContext: While the patient-carer dyad has been broadly described, there is little exploration about carer-patient models in use. Aim: To explore types of carer-patient models in use for those with advanced and progressive disease. Methods: Qualitative interviews were undertaken with patients at risk of dying in the next year and their carers across three sites (residential care home, medical assessment unit, general medical unit). Thematic analysis was undertaken. Results: Four patient-carer models were identified. In these, the provision of care and of coordination of care services were important areas and organised differently across the patient, the carer, and alternative sources of support. Conclusion: A ‘one size fits all’ carer-patient model is outdated and a new understanding of different types of carer-patient models are required to fully inform care delivered at end of life. Key words: End of life len
dc.exception.ref2021codes254aen
dc.funderVictoria University of Wellington, New Zealanden
dc.identifier.citationParker, R., deVries, K. and Coombs, M.A. (2016) Redefining the patient-carer model at end of life. International Journal of Palliative Nursing, 22(6), pp.272–277.en
dc.identifier.doihttps://doi.org/10.12968/ijpn.2016.22.6.272
dc.identifier.issn1357-6321
dc.identifier.urihttp://eprints.brighton.ac.uk/id/eprint/15788
dc.identifier.urihttp://hdl.handle.net/2086/17067
dc.language.isoenen
dc.peerreviewedYesen
dc.projectidN/Aen
dc.publisherMA Healthcare Ltden
dc.researchinstituteInstitute of Health, Health Policy and Social Careen
dc.subjectEnd of lifeen
dc.subjectCarer-patient dyaden
dc.subjectPalliative careen
dc.subjectAdvanced diseaseen
dc.subjectCareren
dc.titleRedefining the patient-carer model at end of lifeen
dc.typeArticleen

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