Redefining the patient-carer model at end of life

Date

2016-07-21

Advisors

Journal Title

Journal ISSN

ISSN

1357-6321

Volume Title

Publisher

MA Healthcare Ltd

Type

Article

Peer reviewed

Yes

Abstract

Context: While the patient-carer dyad has been broadly described, there is little exploration about carer-patient models in use. Aim: To explore types of carer-patient models in use for those with advanced and progressive disease. Methods: Qualitative interviews were undertaken with patients at risk of dying in the next year and their carers across three sites (residential care home, medical assessment unit, general medical unit). Thematic analysis was undertaken. Results: Four patient-carer models were identified. In these, the provision of care and of coordination of care services were important areas and organised differently across the patient, the carer, and alternative sources of support. Conclusion: A ‘one size fits all’ carer-patient model is outdated and a new understanding of different types of carer-patient models are required to fully inform care delivered at end of life. Key words: End of life l

Description

The author's final peer reviewed version can be found by following the URI link. The Publisher's final version can be found by following the DOI link.

Keywords

End of life, Carer-patient dyad, Palliative care, Advanced disease, Carer

Citation

Parker, R., deVries, K. and Coombs, M.A. (2016) Redefining the patient-carer model at end of life. International Journal of Palliative Nursing, 22(6), pp.272–277.

Rights

Research Institute

Institute of Health, Health Policy and Social Care