A qualitative study of patients' experiences of participating in SPACE FOR COPD: A self-management Programme of Activitiy, Coping and Education

dc.cclicenceCC-BY-NCen
dc.contributor.authorApps, L. D.en
dc.contributor.authorHarrison, S. L.en
dc.contributor.authorMitchell, Katy E.en
dc.contributor.authorWilliams, Johanna A.en
dc.contributor.authorHudson, Nickyen
dc.contributor.authorSingh, S. J.en
dc.date.acceptance2017-08-06en
dc.date.accessioned2017-10-12T13:36:10Z
dc.date.available2017-10-12T13:36:10Z
dc.date.issued2017-10
dc.descriptionopen access articleen
dc.description.abstractAims: To understand experiences of participation in a supported self-management programme for COPD (Chronic Obstructive Pulmonary Disease). Background: There is a wealth of clinical trials examining the outcomes of self-management interventions for individuals with COPD, but current understanding regarding patients’ perspectives of such complex interventions is limited. Further insight may help to tailor self-management interventions and maximise patient engagement. Methods: Semi-structured interviews were conducted with individuals participating in a self-management programme, SPACE FOR COPD. Interviews took place at six weeks and six months following the programme. Data were analysed at each time point using inductive thematic analysis and subsequently re-examined together. Results: Forty interviews were carried out and four themes emerged from the analysis; ‘perceptions of the programme’, ‘lifestyle changes’, ‘social support’ and ‘disrupting factors and barriers to maintaining routines’. Conclusion: SPACE FOR COPD was acceptable to participants in this study.The importance of education and social support was emphasised at both time points, but with challenges such as co-morbidities, family members’ ill health, limited maintenance of exercise behaviours over the longer term. Further consideration of the role of carers and partners may help to improve adherence with self-management programmes once healthcare professional support has stopped.en
dc.exception.reasonopen access articleen
dc.funderNIHR Research for Patient Benefiten
dc.identifier.citationApps ,LD., Harrison, S.L., Mitchell, K.E., et al. (2017) A qualitative study of patients’ experiences of participating in SPACE for COPD: a Self-management Programme of Activity, Coping and Education. ERJ Open Res; 3: 00017-2017 [https://doi.org/10.1183/23120541.00017-2017].en
dc.identifier.doihttps://doi.org/10.1183/23120541.00017-2017
dc.identifier.urihttp://hdl.handle.net/2086/14608
dc.language.isoenen
dc.peerreviewedYesen
dc.projectidPB-PG-0808-17146en
dc.publisherERJ Open Researchen
dc.researchinstituteInstitute for Psychological Scienceen
dc.researchinstituteCentre for Reproduction Research (CRR)en
dc.subjectCOPDen
dc.subjectQualitativeen
dc.subjectSelf-managementen
dc.subjectPatient educationen
dc.titleA qualitative study of patients' experiences of participating in SPACE FOR COPD: A self-management Programme of Activitiy, Coping and Educationen
dc.typeArticleen

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