Living with Sickle Cell or Beta Thalassaemia Trait: Implications for Identity and Social Life

Previous policy oriented and sociological research on sickle cell and thalassaemia disorders has tended to focus on how carrier status impacts on reproductive choices or decisions related to antenatal screening. We know little about how being a ‘healthy carrier’ impacts on people’s ideas about health and illness or, more broadly, their sense of social relationships and identity at different phases of the life-course.