Public health, research and rights: the perspectives of deliberation panels with politically and socially active disabled people

Date

2017-06-24

Advisors

Journal Title

Journal ISSN

ISSN

Volume Title

Publisher

Taylor and Francis

Type

Article

Peer reviewed

Yes

Abstract

Public health research purports to provide the evidence base for policies, programmes and interventions to improve the health of a population. However, there is increasing awareness that the experiences of disabled people have played little part in informing this evidence base. This paper discusses one aspect of a study commissioned by England’s National Institute for Health Research (NIHR) to review the implications for public health of theories and models of disability. This part of the study focused on the development of a tool or decision aid to promote ethical inclusion of disabled people in public health randomised controlled trials (RCTs) and evaluative research. The tool was introduced at four regional ‘deliberating panels’ involving politically and socially active disabled people. In addition, we held a panel with public health professionals. The deliberation panels debated how the focus of public health was narrowing, why disability was excluded and positive and negative issues with using rights to guide research and evaluative practice. Politically active disabled people argued for a social model of human rights to guide any rights based tools or decision aids in public health and disability research.

Description

The file attached to this record is the author's final peer reviewed version. The Publisher's final version can be found by following the DOI link.
Open Access article

Keywords

Citation

Berghs, M. et al. (2017) Public health, research and rights: the perspectives of deliberation panels with politically and socially active disabled people. Disability & Society, 32 (7), pp. 945-965

Rights

Research Institute

Institute for Allied Health Sciences Research
Institute of Health, Health Policy and Social Care