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Sickle Cell: A Guide to School Policy (Second Edition)
A second edition of the Guide to School Policy on Sickle Cell and Thalassaemia
Sickle Cell and Thalassaemia: A Guide to School Policy (English Version)
This booklet has been produced based on research examining the experiences of young people with sickle cell disorder in schools in England. An important part of school inclusiveness is recognizing the importance of offering ...
Reported school experiences of young people living with sickle cell disorder in England.
A survey of 569 young people with sickle cell disorder (SCD) in England has found such pupils miss considerable periods of time from school, typically in short periods of two or three days. One-in-eight have school absences ...
The educational experiences of young people with sickle cell disorder: a commentary on the existing literature
(Taylor and Francis, 2007)
Sickle cell disease (SCD) is a chronic illness that in England disproportionately affects marginalized ethnic groups, but has yet to feature extensively within educational or disability research. This review of existing ...
“I can die today, I can die tomorrow”: Lay perceptions of sickle cell disease in Kumasi, Ghana at a point of transition.
(Routledge (Taylor & Francis), 2012-01)
Objective To describe the lay meanings of sickle cell disease in the Ashanti region of Ghana. Design Depth interviews with 31 fathers of people with sickle cell disease; a focus group with health professionals ...
Disclosure and sickle cell disorder: a mixed methods study of the young person with sickle cell at school.
Sickle cell is a leading genetic condition, both globally and in England. Little research has been conducted into the experiences of young people with sickle cell at school. A mixed methods study (May 2007–September 2008) ...
School ethos and variation in health experience of young people with sickle cell disorder at school
Young people with the serious chronic illness, such as sickle cell disorder, report high levels of negative experiences at school that have adverse effects on their health. Disclosure of sickle cell status appears unrelated ...
Living with Sickle Cell Disease and Depression in Lagos, Nigeria: A Mixed Methods Study
Sickle cell disorders (SCD) and depression are both chronic illnesses of global significance. Past research on SCD and depression struggles to make sense of statistical associations, essentializes depression within the ...
Sickle cell, habitual dyspositions and fragile dispositions: young people with sickle cell at school.
The experiences of young people living with a sickle cell disorder in schools in England are reported through a thematic analysis of forty interviews, using Bourdieu’s notions of field, capital and habitus. Young people ...