For sickle cell and thalassaemia, social science is critical if we wish to understand the social context of - and how people experience - the two conditions. Sickle cell and thalassaemia are more than simply ‘being of’, ...

Greater priority, and appropriate resources, need to be accorded to the provision of sickle cell and thalassaemia services. Sickle cell and thalassaemia disorders are among the most common genetic conditions in the world. ...

Sickle cell and thalassaemia are among the world’s most common genetic conditions. They are especially common in Africa, Brazil, the Caribbean, the Middle East and Asia. They affect all ethnic groups but they particularly ...

Sickle cell and thalassaemia are among the world’s leading genetic conditions with over five per cent of the world’s population carrying clinically significant haemoglobin gene variants (Modell and Darlison, 2008). In the ...

Previous policy oriented and sociological research on sickle cell and thalassaemia disorders has tended to focus on how carrier status impacts on reproductive choices or decisions related to antenatal screening. We know ...

A multidisciplinary conference of social science researchers working on sickle cell and thalassemia attracted 80 delegates from ten countries and included psychologists, sociologists, nurses, counselors, social policy ...

A second edition of the Guide to School Policy on Sickle Cell and Thalassaemia

This booklet has been produced based on research examining the experiences of young people with sickle cell disorder in schools in England. An important part of school inclusiveness is recognizing the importance of offering ...

The moral turn within sociology suggests we need to be attentive to values and have a rapprochement with philosophy. The study of illness narratives is one area of sociology that has consistently addressed itself to moral ...

It is with great pleasure that, as guest and current editor respectively, we introduce Ethnicity and Health’s collection on the haemoglobin disorders sickle cell and thalassaemia. Sickle cell and thalassaemia are among ...