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Sickle cell and thalassaemia: why social science is critical to improving care and service support.
(Routledge (Taylor and Francis), 2012-01)
For sickle cell and thalassaemia, social science is critical if we wish to understand the social context of - and how people experience - the two conditions. Sickle cell and thalassaemia are more than simply ‘being of’, ...
Genetics and Global Public Health: Sickle Cell and Thalassaemia.
(Routledge (Taylor & Francis), 2012-01)
Sickle cell and thalassaemia are among the world’s most common genetic conditions. They are especially common in Africa, Brazil, the Caribbean, the Middle East and Asia. They affect all ethnic groups but they particularly ...
Sickle cell and thalassaemia: global public health issues come of age.
(Routledge (Taylor and Francis), 2012-01)
Sickle cell and thalassaemia are among the world’s leading genetic conditions with over five per cent of the world’s population carrying clinically significant haemoglobin gene variants (Modell and Darlison, 2008). In the ...
Territory, ancestry and descent: the politics of sickle cell disease.
(Sage, 2011-12-20)
Sociologists have long questioned the naturalness and stability of ‘ethnic groups’, suggesting that a concern with how they are socially constituted is more appropriate. However, the example of genetically based medical ...
Sickle cell in the university curriculum: a survey assessing demand for open access educational materials in a constructed community of interest .
(Radcliffe Publishing, 2011-03)
Successive UK governments have sought to support expanded teaching of science, technology, engineering and mathematics (STEM) subjects within university curricula. There is an increased expectation that the education of ...
Narrative as re-fusion: making sense and value from sickle cell and thalassaemia trait
(Sage, 2016-08-03)
The moral turn within sociology suggests we need to be attentive to values and have a rapprochement with philosophy. The study of illness narratives is one area of sociology that has consistently addressed itself to moral ...
“I can die today, I can die tomorrow”: Lay perceptions of sickle cell disease in Kumasi, Ghana at a point of transition.
(Routledge (Taylor & Francis), 2012-01)
Objective
To describe the lay meanings of sickle cell disease in the Ashanti region of Ghana.
Design
Depth interviews with 31 fathers of people with sickle cell disease; a focus group with health professionals ...
"Talk to me. There's two of us": Fathers and sickle cell screening.
(SAGE (British Sociological Association), 2015-02-03)
Studying kinship has involved doing family, displaying family, and ‘displaying family’ as a sensitizing concept to understand modalities troublesome to display. Fathers at ante-natal screening clinics for sickle cell are ...
Resignifing the sickle cell gene: narratives of genetic risk, impairment and repair
(Sage, 2015-07-24)
Connecting theoretical discussion with empirical qualitative work, this paper examines how sickle cell became a site of public health intervention in terms of ‘racialised’ risks. Historically, sickle cell became socio-politically ...
Sickle Cell and the Social Sciences: Health, Racism and Disablement
(Routledge (Taylor & Francis), 2019-04-15)
Sickle cell disease (SCD) is a severe chronic illness and one of the world’s most common genetic conditions, with 400,000 children born annually with the disorder, mainly in Sub-Saharan Africa, India, Brazil, the Middle ...