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Sickle cell and thalassaemia: why social science is critical to improving care and service support.
(Routledge (Taylor and Francis), 2012-01)
For sickle cell and thalassaemia, social science is critical if we wish to understand the social context of - and how people experience - the two conditions. Sickle cell and thalassaemia are more than simply ‘being of’, ...
Sickle cell and thalassaemia: global public health issues come of age.
(Routledge (Taylor and Francis), 2012-01)
Sickle cell and thalassaemia are among the world’s leading genetic conditions with over five per cent of the world’s population carrying clinically significant haemoglobin gene variants (Modell and Darlison, 2008). In the ...
Territory, ancestry and descent: the politics of sickle cell disease.
(Sage, 2011-12-20)
Sociologists have long questioned the naturalness and stability of ‘ethnic groups’, suggesting that a concern with how they are socially constituted is more appropriate. However, the example of genetically based medical ...
Sickle cell in the university curriculum: a survey assessing demand for open access educational materials in a constructed community of interest .
(Radcliffe Publishing, 2011-03)
Successive UK governments have sought to support expanded teaching of science, technology, engineering and mathematics (STEM) subjects within university curricula. There is an increased expectation that the education of ...
First Conference of the Worldwide Initiative on Social Studies of Haemoglobinopathies (WISSH), SICKLE CELL: THE NEXT 100 YEARS
(2011-12)
A multidisciplinary conference of social science researchers working on sickle cell and thalassemia attracted 80 delegates from ten countries and included psychologists, sociologists, nurses, counselors, social policy ...
Reported school experiences of young people living with sickle cell disorder in England.
(Routledge, 2010-02)
A survey of 569 young people with sickle cell disorder (SCD) in England has found such pupils miss considerable periods of time from school, typically in short periods of two or three days. One-in-eight have school absences ...
“I can die today, I can die tomorrow”: Lay perceptions of sickle cell disease in Kumasi, Ghana at a point of transition.
(Routledge (Taylor & Francis), 2012-01)
Objective
To describe the lay meanings of sickle cell disease in the Ashanti region of Ghana.
Design
Depth interviews with 31 fathers of people with sickle cell disease; a focus group with health professionals ...
Disclosure and sickle cell disorder: a mixed methods study of the young person with sickle cell at school.
(Elsevier, 2010-05-08)
Sickle cell is a leading genetic condition, both globally and in England. Little research has been conducted into the experiences of young people with sickle cell at school. A mixed methods study (May 2007–September 2008) ...
School ethos and variation in health experience of young people with sickle cell disorder at school
(Radcliffe, 2012)
Young people with the serious chronic illness, such as sickle cell disorder, report high levels of negative experiences at school that have adverse effects on their health. Disclosure of sickle cell status appears unrelated ...
Sickle Cell and the Social Sciences: Health, Racism and Disablement
(Routledge (Taylor & Francis), 2019-04-15)
Sickle cell disease (SCD) is a severe chronic illness and one of the world’s most common genetic conditions, with 400,000 children born annually with the disorder, mainly in Sub-Saharan Africa, India, Brazil, the Middle ...
