For sickle cell and thalassaemia, social science is critical if we wish to understand the social context of - and how people experience - the two conditions. Sickle cell and thalassaemia are more than simply ‘being of’, ...

Sickle cell and thalassaemia are among the world’s most common genetic conditions. They are especially common in Africa, Brazil, the Caribbean, the Middle East and Asia. They affect all ethnic groups but they particularly ...

Sickle cell and thalassaemia are among the world’s leading genetic conditions with over five per cent of the world’s population carrying clinically significant haemoglobin gene variants (Modell and Darlison, 2008). In the ...

Objective To describe the lay meanings of sickle cell disease in the Ashanti region of Ghana. Design Depth interviews with 31 fathers of people with sickle cell disease; a focus group with health professionals ...

Young people with the serious chronic illness, such as sickle cell disorder, report high levels of negative experiences at school that have adverse effects on their health. Disclosure of sickle cell status appears unrelated ...