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Sickle cell and thalassaemia: why social science is critical to improving care and service support.
(Routledge (Taylor and Francis), 2012-01)
For sickle cell and thalassaemia, social science is critical if we wish to understand the social context of - and how people experience - the two conditions. Sickle cell and thalassaemia are more than simply ‘being of’, ...
Valuing people with sickle cell disease
(Reed, 2016-09-30)
Employers need to be flexible when managing sickle cell disease in the workplace and sensitive to the risks of discrimination. Diana De, Simon Dyson and Karl Atkin offer evidence-based guidance and recommendations.
Achieve equity in access to sickle cell services
(EMAP Publishing Limited, 2013-11-26)
Greater priority, and appropriate resources, need to be accorded to the provision of sickle cell and thalassaemia services. Sickle cell and thalassaemia disorders are among the most common genetic conditions in the world. ...
Genetics and Global Public Health: Sickle Cell and Thalassaemia.
(Routledge (Taylor & Francis), 2012-01)
Sickle cell and thalassaemia are among the world’s most common genetic conditions. They are especially common in Africa, Brazil, the Caribbean, the Middle East and Asia. They affect all ethnic groups but they particularly ...
Sickle cell and thalassaemia: global public health issues come of age.
(Routledge (Taylor and Francis), 2012-01)
Sickle cell and thalassaemia are among the world’s leading genetic conditions with over five per cent of the world’s population carrying clinically significant haemoglobin gene variants (Modell and Darlison, 2008). In the ...
Living with Sickle Cell or Beta Thalassaemia Trait: Implications for Identity and Social Life
(University of York, 2014)
Previous policy oriented and sociological research on sickle cell and thalassaemia disorders has tended to focus on how carrier status impacts on reproductive choices or decisions related to antenatal screening. We know ...
Narrative as re-fusion: making sense and value from sickle cell and thalassaemia trait
(Sage, 2016-08-03)
The moral turn within sociology suggests we need to be attentive to values and have a rapprochement with philosophy. The study of illness narratives is one area of sociology that has consistently addressed itself to moral ...
Critical realism, agency and sickle cell: case studies of young people with sickle cell disorder at school
(2013-07-26)
Critical realism suggests that historical structures may operate as underlying generative mechanisms but not always be activated. This explains the near-absence of references to racism by black students with sickle cell ...
Reported school experiences of young people living with sickle cell disorder in England.
(Routledge, 2010-02)
A survey of 569 young people with sickle cell disorder (SCD) in England has found such pupils miss considerable periods of time from school, typically in short periods of two or three days. One-in-eight have school absences ...
Disclosure and sickle cell disorder: a mixed methods study of the young person with sickle cell at school.
(Elsevier, 2010-05-08)
Sickle cell is a leading genetic condition, both globally and in England. Little research has been conducted into the experiences of young people with sickle cell at school. A mixed methods study (May 2007–September 2008) ...