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Lessons for intermediate and low prevalence areas in England from the Ethnicity Questions and Antenatal Screening for sickle cell / thalassaemia [EQUANS] study
This study evaluates a temporary research-based intervention of universal ante-natal screening for sickle cell/thalassaemia in two areas of England of intermediate (1.29 per 10,000) and low (0.18 per 10,0000) expected ...
Genetics and Global Public Health: Sickle Cell and Thalassaemia.
(Routledge (Taylor & Francis), 2012-01)
Sickle cell and thalassaemia are among the world’s most common genetic conditions. They are especially common in Africa, Brazil, the Caribbean, the Middle East and Asia. They affect all ethnic groups but they particularly ...
Midwives' knowledge of haemoglobinopathies
(Hayward Medical Communications, 1996)
This paper addresses the educational implications of a study of midwives and senior student midwives knowledge of haemoglobinopathies. Knowledge was assessed from 850 multiple choice questionnaires. Respondents who had ...
Midwives' knowledge of haemoglobinopathies.
(De Montfort University, 1995)
Deconstructing genetic counselling: haemoglobinopathy counsellors in the United Kingdom.
(International Institute for the Sociology of Law, 1998)
The paper begins with a brief description of sickle cell anaemia and beta-thalassaemia, the main haemoglobin disorders considered here. It then moves to a consideration of the bases of deconstruction as derived from Jacques ...
Genetic screening and ethnic minorities.
No theory of 'race' and ethnicity is without serious practical drawbacks for effecting selective screening for haemoglobin disorders. Universal screening raises issues about consent, resources, and eugenicist representation ...
Midwives' and senior student midwives' knowledge of haemoglobinopathies in England.
Objective: To examine midwives' and senior student midwives' knowledge concerning sickle cell anaemia and beta-thalassaemia. Design: Survey using the Dyson Questionnaires. Setting: Study days on 26 sites across England ...
First Conference of the Worldwide Initiative on Social Studies of Haemoglobinopathies (WISSH), SICKLE CELL: THE NEXT 100 YEARS
A multidisciplinary conference of social science researchers working on sickle cell and thalassemia attracted 80 delegates from ten countries and included psychologists, sociologists, nurses, counselors, social policy ...