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Lessons for intermediate and low prevalence areas in England from the Ethnicity Questions and Antenatal Screening for sickle cell / thalassaemia [EQUANS] study
This study evaluates a temporary research-based intervention of universal ante-natal screening for sickle cell/thalassaemia in two areas of England of intermediate (1.29 per 10,000) and low (0.18 per 10,0000) expected ...
Genetic traits as pollution: ‘White English’ carriers of sickle cell or thalassaemia
From April 2004, the policy for neonatal screening for sickle cell in England has been to base the screening on universal principles (offer the screening to all new-born babies) rather than selective screening (an attempt ...
Ethnicity questions and antenatal screening for sickle cell/thalassaemia (EQUANS) in England : Observation and interview study.
Objectives To describe understandings that mothers and midwives have of ethnicity. To explore barriers to the successful implementation of ethnicity screening questions for sickle cell/thalassaemia. Design Observation ...
The educational experiences of young people with sickle cell disorder: a commentary on the existing literature
(Taylor and Francis, 2007)
Sickle cell disease (SCD) is a chronic illness that in England disproportionately affects marginalized ethnic groups, but has yet to feature extensively within educational or disability research. This review of existing ...