Now showing items 21-30 of 59
Clients-as-researchers: issues in haemoglobinopathy research.
(Whiting & Birch, 1995)
The haemoglobinopathies (sickle cell anaemia and beta-thalassaemia) are serious inherited blood disorders which in Britain predominantly, but by no means exclusively, affect people of African-Caribbean, Asian, Middle Eastern ...
Territory, ancestry and descent: the politics of sickle cell disease.
Sociologists have long questioned the naturalness and stability of ‘ethnic groups’, suggesting that a concern with how they are socially constituted is more appropriate. However, the example of genetically based medical ...
Haemoglobinopathies, antenatal screening and the midwife.
(Mark Allen, 1996)
Key Points Lack of national enforceable and funded standards for screening for the haemoglobinopathies means that a great deal of discretion is devolved to the individual midwife. Naive conceptions of ‘race’ and lack of ...
Sickle cell in the university curriculum: a survey assessing demand for open access educational materials in a constructed community of interest .
(Radcliffe Publishing, 2011-03)
Successive UK governments have sought to support expanded teaching of science, technology, engineering and mathematics (STEM) subjects within university curricula. There is an increased expectation that the education of ...
Living with Sickle Cell or Beta Thalassaemia Trait: Implications for Identity and Social Life
(University of York, 2014)
Previous policy oriented and sociological research on sickle cell and thalassaemia disorders has tended to focus on how carrier status impacts on reproductive choices or decisions related to antenatal screening. We know ...
First Conference of the Worldwide Initiative on Social Studies of Haemoglobinopathies (WISSH), SICKLE CELL: THE NEXT 100 YEARS
A multidisciplinary conference of social science researchers working on sickle cell and thalassemia attracted 80 delegates from ten countries and included psychologists, sociologists, nurses, counselors, social policy ...
Black community members-as-researchers: working with community groups in the research process.
(Whiting and Birch, 1997)
This paper will explore the experience of two sets of research projects involving members of black and minority ethnic communities in the role of researchers. The projects involved working with groups, first, in providing ...
Sickle Cell and Thalassaemia screening.
Sickle Cell: A Guide to School Policy (Second Edition)
A second edition of the Guide to School Policy on Sickle Cell and Thalassaemia
Sickle Cell Anaemia: Current Carrier and Community Awareness in Leicester
(De Montfort University, 1994)