Now showing items 11-20 of 22
The educational experiences of young people with sickle cell disorder: a commentary on the existing literature
(Taylor and Francis, 2007)
Sickle cell disease (SCD) is a chronic illness that in England disproportionately affects marginalized ethnic groups, but has yet to feature extensively within educational or disability research. This review of existing ...
Education and young people with sickle cell disorder: a knowledge review.
(Radcliffe Publishing, 2008)
Disclosure and sickle cell disorder: a mixed methods study of the young person with sickle cell at school.
Sickle cell is a leading genetic condition, both globally and in England. Little research has been conducted into the experiences of young people with sickle cell at school. A mixed methods study (May 2007–September 2008) ...
School ethos and variation in health experience of young people with sickle cell disorder at school
Young people with the serious chronic illness, such as sickle cell disorder, report high levels of negative experiences at school that have adverse effects on their health. Disclosure of sickle cell status appears unrelated ...
"Talk to me. There's two of us": Fathers and sickle cell screening.
(SAGE (British Sociological Association), 2015-02-03)
Studying kinship has involved doing family, displaying family, and ‘displaying family’ as a sensitizing concept to understand modalities troublesome to display. Fathers at ante-natal screening clinics for sickle cell are ...
‘Who's the guy in the room?’ Involving fathers in antenatal care screening for sickle cell disorders
Fathers are increasingly invited to take part in antenatal care of which screening for sickle cell trait is a part. Expectations about involvement reflect changing perceptions of fatherhood and negotiation of gendered ...
Involving Fathers in Ante-Natal Screening for Sickle Cell Disorders: Improving Informed Decision-Making
(University of York, 2014)
There are many reasons why fathers find it difficult to be involved in ante-natal screening for sickle cell disorders. Some are the consequence of disadvantage and inequalities, others are associated with how services are ...
Resignifing the sickle cell gene: narratives of genetic risk, impairment and repair
Connecting theoretical discussion with empirical qualitative work, this paper examines how sickle cell became a site of public health intervention in terms of ‘racialised’ risks. Historically, sickle cell became socio-politically ...
Sickle cell, habitual dyspositions and fragile dispositions: young people with sickle cell at school.
The experiences of young people living with a sickle cell disorder in schools in England are reported through a thematic analysis of forty interviews, using Bourdieu’s notions of field, capital and habitus. Young people ...