Now showing items 1-10 of 18
Midwives' knowledge of haemoglobinopathies.
(De Montfort University, 1995)
Beta Thalassaemia: Current carrier and community awareness in Leicestershire.
(De Montfort University, 1994)
Genetic screening and ethnic minorities.
No theory of 'race' and ethnicity is without serious practical drawbacks for effecting selective screening for haemoglobin disorders. Universal screening raises issues about consent, resources, and eugenicist representation ...
Deconstructing genetic counselling: haemoglobinopathy counsellors in the United Kingdom.
(International Institute for the Sociology of Law, 1998)
The paper begins with a brief description of sickle cell anaemia and beta-thalassaemia, the main haemoglobin disorders considered here. It then moves to a consideration of the bases of deconstruction as derived from Jacques ...
Clients-as-researchers: issues in haemoglobinopathy research.
(Whiting & Birch, 1995)
The haemoglobinopathies (sickle cell anaemia and beta-thalassaemia) are serious inherited blood disorders which in Britain predominantly, but by no means exclusively, affect people of African-Caribbean, Asian, Middle Eastern ...
Black community members-as-researchers: working with community groups in the research process.
(Whiting and Birch, 1997)
This paper will explore the experience of two sets of research projects involving members of black and minority ethnic communities in the role of researchers. The projects involved working with groups, first, in providing ...
Thalassaemia: establishing basic awareness.
(Health Visitors Association, 1993-10)
Thalassaemia has until recently received little attention and consequently is not widely understood by health professionals, write Simon Dyson, Verna Davis and Rafeya Rahman. In the first of three articles they describe ...
Black community members as researchers: two projects compared.
Genetic knowledge: the contribution of sociologies
(Kluwer Academic / Plenum Press, 1999)
Different sociologies have a contribution to make in terms of identifying problems with untheorized notions of lay knowledge about genetics. This chapter reviews the insights afforded by different sociological traditions, ...
The new genetics and professional identities in international context
(Department of Sociology, University of Goteburg, Sweden, 1999)
This paper is concerned with the formation of and processes of changes in professional identities, especially those professional groups associated with the new genetics, be they learned scientific professions, clinicians ...