A second edition of the Guide to School Policy on Sickle Cell and Thalassaemia

This booklet has been produced based on research examining the experiences of young people with sickle cell disorder in schools in England. An important part of school inclusiveness is recognizing the importance of offering ...

A survey of 569 young people with sickle cell disorder (SCD) in England has found such pupils miss considerable periods of time from school, typically in short periods of two or three days. One-in-eight have school absences ...

Sickle cell disease (SCD) is a chronic illness that in England disproportionately affects marginalized ethnic groups, but has yet to feature extensively within educational or disability research. This review of existing ...

Objective To describe the lay meanings of sickle cell disease in the Ashanti region of Ghana. Design Depth interviews with 31 fathers of people with sickle cell disease; a focus group with health professionals ...

Sickle cell is a leading genetic condition, both globally and in England. Little research has been conducted into the experiences of young people with sickle cell at school. A mixed methods study (May 2007–September 2008) ...

Young people with the serious chronic illness, such as sickle cell disorder, report high levels of negative experiences at school that have adverse effects on their health. Disclosure of sickle cell status appears unrelated ...

This chapter aims to: • Understand how patterns of disablement and chronic illness may partly derive from levels of material deprivation. • Illustrate why it may be important to look at the interactions not only between ...

Sickle cell disorders (SCD) and depression are both chronic illnesses of global significance. Past research on SCD and depression struggles to make sense of statistical associations, essentializes depression within the ...