This paper is concerned with the formation of and processes of changes in professional identities, especially those professional groups associated with the new genetics, be they learned scientific professions, clinicians ...

This paper addresses the educational implications of a study of midwives and senior student midwives knowledge of haemoglobinopathies. Knowledge was assessed from 850 multiple choice questionnaires. Respondents who had ...

Sickle cell anaemia and thalassaemia are genetic conditions which affect people from Black and ethnic minority communities in much greater numbers than White people, and they remain ill-understood. In this chapter Simon ...

The paper begins with a brief description of sickle cell anaemia and beta-thalassaemia, the main haemoglobin disorders considered here. It then moves to a consideration of the bases of deconstruction as derived from Jacques ...

No theory of 'race' and ethnicity is without serious practical drawbacks for effecting selective screening for haemoglobin disorders. Universal screening raises issues about consent, resources, and eugenicist representation ...

Objective: To examine midwives' and senior student midwives' knowledge concerning sickle cell anaemia and beta-thalassaemia. Design: Survey using the Dyson Questionnaires. Setting: Study days on 26 sites across England ...

The haemoglobinopathies (sickle cell anaemia and beta-thalassaemia) are serious inherited blood disorders which in Britain predominantly, but by no means exclusively, affect people of African-Caribbean, Asian, Middle Eastern ...

Key Points Lack of national enforceable and funded standards for screening for the haemoglobinopathies means that a great deal of discretion is devolved to the individual midwife. Naive conceptions of ‘race’ and lack of ...

This paper will explore the experience of two sets of research projects involving members of black and minority ethnic communities in the role of researchers. The projects involved working with groups, first, in providing ...