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"Talk to me. There's two of us": Fathers and sickle cell screening.
(SAGE (British Sociological Association), 2015-02-03)
Studying kinship has involved doing family, displaying family, and ‘displaying family’ as a sensitizing concept to understand modalities troublesome to display. Fathers at ante-natal screening clinics for sickle cell are ...
‘Who's the guy in the room?’ Involving fathers in antenatal care screening for sickle cell disorders
(Elsevier, 2015-01-22)
Fathers are increasingly invited to take part in antenatal care of which screening for sickle cell trait is a part. Expectations about involvement reflect changing perceptions of fatherhood and negotiation of gendered ...
Involving Fathers in Ante-Natal Screening for Sickle Cell Disorders: Improving Informed Decision-Making
(University of York, 2014)
There are many reasons why fathers find it difficult to be involved in ante-natal screening for sickle cell disorders. Some are the consequence of disadvantage and inequalities, others are associated with how services are ...
Resignifing the sickle cell gene: narratives of genetic risk, impairment and repair
(Sage, 2015-07-24)
Connecting theoretical discussion with empirical qualitative work, this paper examines how sickle cell became a site of public health intervention in terms of ‘racialised’ risks. Historically, sickle cell became socio-politically ...
"We di woman den, na we di suffer"
(De Montfort University, 2019-06-19)
Sierra Leone is thought to be one of the West African countries most affected by sickle cell disorders. Estimates state that one in four people carry the gene for sickle cell and between 1 to 2% of births are of children ...
Sickle Cell, Work and Employment: A Guide for Employers and Employees on Sickle Cell Disorder (SCD)
(De Montfort University, 2019-09-01)
Work, Employment and Sickle Cell
This guide is based on research examining the experiences of people with sickle cell disorder (SCD) in work and employment in England. There are duties on employers under the 1996 Employment ...
Barriers and Enablers to Employment: Black Disabled Peoples Living with Sickle Cell Disorder Project.
(De Montfort University, 2019-02-01)
Final report of the Barriers and Enablers to Employment: Black Disabled Peoples Living with Sickle Cell Disorder Project.
Disproportionate Impact on People with Sickle Cell Disorders: Written evidence submitted to Women’s Committee Inquiry on Unequal impact: Coronavirus (Covid-19) and the impact on people with protected characteristics
(2020-04-29)
• There are 14,000 people with SCD in the United Kingdom (UK) and they predominantly belong to the Black, Asian and Minority Ethnic population, often living in families and communities disproportionately impacted by COVID-19 ...
Time to apply a social determinants of health lens to addressing sickle cell disorders in Sub-Saharan Africa
(British Medical Journal, 2020-07)
You have to find a caring man, like your father! Gendering sickle cell and refashioning women's moral boundaries in Sierra Leone
(Elsevier, 2020-08)
Most research on sickle cell disorders has tended to be gender-blind. This qualitative study undertaken in 2018, explores if and how sickle cell disorders become gendered in Sierra Leone through the analytical framework ...
