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Valuing people with sickle cell disease
Employers need to be flexible when managing sickle cell disease in the workplace and sensitive to the risks of discrimination. Diana De, Simon Dyson and Karl Atkin offer evidence-based guidance and recommendations.
Living with Sickle Cell or Beta Thalassaemia Trait: Implications for Identity and Social Life
(University of York, 2014)
Previous policy oriented and sociological research on sickle cell and thalassaemia disorders has tended to focus on how carrier status impacts on reproductive choices or decisions related to antenatal screening. We know ...
Narrative as re-fusion: making sense and value from sickle cell and thalassaemia trait
The moral turn within sociology suggests we need to be attentive to values and have a rapprochement with philosophy. The study of illness narratives is one area of sociology that has consistently addressed itself to moral ...
"Talk to me. There's two of us": Fathers and sickle cell screening.
(SAGE (British Sociological Association), 2015-02-03)
Studying kinship has involved doing family, displaying family, and ‘displaying family’ as a sensitizing concept to understand modalities troublesome to display. Fathers at ante-natal screening clinics for sickle cell are ...
‘Who's the guy in the room?’ Involving fathers in antenatal care screening for sickle cell disorders
Fathers are increasingly invited to take part in antenatal care of which screening for sickle cell trait is a part. Expectations about involvement reflect changing perceptions of fatherhood and negotiation of gendered ...
Resignifing the sickle cell gene: narratives of genetic risk, impairment and repair
Connecting theoretical discussion with empirical qualitative work, this paper examines how sickle cell became a site of public health intervention in terms of ‘racialised’ risks. Historically, sickle cell became socio-politically ...
Sickle cell, habitual dyspositions and fragile dispositions: young people with sickle cell at school.
The experiences of young people living with a sickle cell disorder in schools in England are reported through a thematic analysis of forty interviews, using Bourdieu’s notions of field, capital and habitus. Young people ...