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Why collaborate with children in health research: an analysis of the risks and benefits of collaboration with children
(2012)
Involvement of service users in decision making, in both clinical and research settings, has become a central feature of many health and research funding policies in the last 15 years. Over the same timeframe, there has ...
Men, gender and endometriosis: accounts of chronic illness from the ‘well’ partner
(2012-09)
Endometriosis is a relatively common gynaecological condition affecting up to 2 million women in the UK alone. Common symptoms are chronic pelvic pain, fatigue, heavy painful periods, and a deep pain experienced during ...
Crossing borders to create babies: findings from the Transrep study
(Infertility Network UK Magazine, 2012)
“I can die today, I can die tomorrow”: Lay perceptions of sickle cell disease in Kumasi, Ghana at a point of transition.
(Routledge (Taylor & Francis), 2012-01)
Objective
To describe the lay meanings of sickle cell disease in the Ashanti region of Ghana.
Design
Depth interviews with 31 fathers of people with sickle cell disease; a focus group with health professionals ...
School ethos and variation in health experience of young people with sickle cell disorder at school
(Radcliffe, 2012)
Young people with the serious chronic illness, such as sickle cell disorder, report high levels of negative experiences at school that have adverse effects on their health. Disclosure of sickle cell status appears unrelated ...
Patient Centred Care: Involving Parents/Carers and Children in Developing Healthcare Interventions
(University of Alberta, 2012)
