Now showing items 1-10 of 12
Valuing people with sickle cell disease
Employers need to be flexible when managing sickle cell disease in the workplace and sensitive to the risks of discrimination. Diana De, Simon Dyson and Karl Atkin offer evidence-based guidance and recommendations.
Achieve equity in access to sickle cell services
(EMAP Publishing Limited, 2013-11-26)
Greater priority, and appropriate resources, need to be accorded to the provision of sickle cell and thalassaemia services. Sickle cell and thalassaemia disorders are among the most common genetic conditions in the world. ...
Genetics and Global Public Health: Sickle Cell and Thalassaemia.
(Routledge (Taylor & Francis), 2012-01)
Sickle cell and thalassaemia are among the world’s most common genetic conditions. They are especially common in Africa, Brazil, the Caribbean, the Middle East and Asia. They affect all ethnic groups but they particularly ...
Living with Sickle Cell or Beta Thalassaemia Trait: Implications for Identity and Social Life
(University of York, 2014)
Previous policy oriented and sociological research on sickle cell and thalassaemia disorders has tended to focus on how carrier status impacts on reproductive choices or decisions related to antenatal screening. We know ...
Narrative as re-fusion: making sense and value from sickle cell and thalassaemia trait
The moral turn within sociology suggests we need to be attentive to values and have a rapprochement with philosophy. The study of illness narratives is one area of sociology that has consistently addressed itself to moral ...
Critical realism, agency and sickle cell: case studies of young people with sickle cell disorder at school
Critical realism suggests that historical structures may operate as underlying generative mechanisms but not always be activated. This explains the near-absence of references to racism by black students with sickle cell ...
"Talk to me. There's two of us": Fathers and sickle cell screening.
(SAGE (British Sociological Association), 2015-02-03)
Studying kinship has involved doing family, displaying family, and ‘displaying family’ as a sensitizing concept to understand modalities troublesome to display. Fathers at ante-natal screening clinics for sickle cell are ...
‘Who's the guy in the room?’ Involving fathers in antenatal care screening for sickle cell disorders
Fathers are increasingly invited to take part in antenatal care of which screening for sickle cell trait is a part. Expectations about involvement reflect changing perceptions of fatherhood and negotiation of gendered ...
Involving Fathers in Ante-Natal Screening for Sickle Cell Disorders: Improving Informed Decision-Making
(University of York, 2014)
There are many reasons why fathers find it difficult to be involved in ante-natal screening for sickle cell disorders. Some are the consequence of disadvantage and inequalities, others are associated with how services are ...
Resignifing the sickle cell gene: narratives of genetic risk, impairment and repair
Connecting theoretical discussion with empirical qualitative work, this paper examines how sickle cell became a site of public health intervention in terms of ‘racialised’ risks. Historically, sickle cell became socio-politically ...