For sickle cell and thalassaemia, social science is critical if we wish to understand the social context of - and how people experience - the two conditions. Sickle cell and thalassaemia are more than simply ‘being of’, ...

Sickle cell and thalassaemia are among the world’s leading genetic conditions with over five per cent of the world’s population carrying clinically significant haemoglobin gene variants (Modell and Darlison, 2008). In the ...

No theory of 'race' and ethnicity is without serious practical drawbacks for effecting selective screening for haemoglobin disorders. Universal screening raises issues about consent, resources, and eugenicist representation ...

Objective: To examine midwives' and senior student midwives' knowledge concerning sickle cell anaemia and beta-thalassaemia. Design: Survey using the Dyson Questionnaires. Setting: Study days on 26 sites across England ...

Key Points Lack of national enforceable and funded standards for screening for the haemoglobinopathies means that a great deal of discretion is devolved to the individual midwife. Naive conceptions of ‘race’ and lack of ...

The new genetics has brought forth concerns that such developments as screening for genetic diseases will accentuate the oppression of minority ethnic groups [Bradby (1996) Genetics and racism. In The Troubled Helix: ...

It is with great pleasure that, as guest and current editor respectively, we introduce Ethnicity and Health’s collection on the haemoglobin disorders sickle cell and thalassaemia. Sickle cell and thalassaemia are among ...