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dc.contributor.authorWilliamson, I. R.en
dc.date.accessioned2018-02-14T12:24:44Z
dc.date.available2018-02-14T12:24:44Z
dc.date.issued2018-01-24
dc.identifier.citationWilliamson, I. (2018) I am everything but myself: Exploring visual voice accounts of single mothers caring for a daughter with Rett syndrome, Qualitative Research in Psychology, 16 (4), pp. 566-590en
dc.identifier.issn1478-0887
dc.identifier.issn1478-0895
dc.identifier.urihttp://hdl.handle.net/2086/15210
dc.descriptionThe file attached to this record is the author's final peer reviewed version. The Publisher's final version can be found by following the DOI linken
dc.description.abstractCaring for a disabled child as a lone parent is complex and dynamic, and can affect well-being significantly. Five single mothers caring for a daughter with Rett syndrome took photographs to document their experiences prior to taking part in extended interviews lasting one to two hours. Verbal and visual data were analysed together using interpretative phenomenological analysis. Two inter-connected themes are presented. Committing to ‘Total Caregiving’ captures the ways in which the mothers aspired to excel at caregiving, anticipating and meeting their daughter’s needs, projecting them from stigma but at considerable cost to themselves, Self-Abnegation and Existential Crisis outlines the associated psychological challenges experienced by the women – especially how they felt ‘fused’ in a negative triad with their daughters and a personified ‘Retts’; a malign all-encompassing force in their lives. Applications of the findings to interventions and an evaluation of the methodologies in the context of qualitative research are offereden
dc.language.isoenen
dc.publisherTaylor and Francisen
dc.subjectRett Syndromeen
dc.subjectphenomenologyen
dc.subjectphoto-interviewsen
dc.subjectcaregivingen
dc.titleI am everything but myself: Exploring visual voice accounts of single mothers caring for a daughter with Rett syndromeen
dc.typeArticleen
dc.identifier.doihttps://doi.org/10.1080/14780887.2018.1431751
dc.researchgroupHealth Psychologyen
dc.peerreviewedYesen
dc.funderN/Aen
dc.projectidN/Aen
dc.cclicenceCC-BY-NC-SAen
dc.date.acceptance2018-01-19en
dc.researchinstituteInstitute for Psychological Scienceen


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