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dc.contributor.authorDyson, Simonen
dc.contributor.authorAhmad, Waqar I.U.en
dc.contributor.authorAtkin, Karlen
dc.date.accessioned2016-06-30T10:50:34Z
dc.date.available2016-06-30T10:50:34Z
dc.date.issued2016-08-03
dc.identifier.citationDyson, S.M., Ahmad, W.I.U. and Atkin, K. (2016/2017) Narrative as re-fusion: making sense and value from sickle cell and thalassaemia trait. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine,20 (6), pp. 616-634en
dc.identifier.issn1363-4593
dc.identifier.urihttp://hdl.handle.net/2086/12208
dc.description.abstractThe moral turn within sociology suggests we need to be attentive to values and have a rapprochement with philosophy. The study of illness narratives is one area of sociology that has consistently addressed itself to moral domains, but has tended to focus on stories of living with genetic or chronic illness per se rather than liminal states such as genetic traits. This paper takes the case of genetic carriers within racialized minority groups, namely those with sickle cell or thalassaemia trait, and takes seriously the notion that their narratives are ethical practices. In line with the work of Paul Ricoeur, such storied practices are found to link embodiment, social relationships with significant others, and wider socio-cultural and socio-political relations. At the same time, such practices are about embodying values. These narratives may be considered as practices that re-fuse what genetic counselling has de-fused, in order to make sense of a life in its entirety and to strive ethically and collectively towards preferred social realities.en
dc.language.isoenen
dc.publisherSageen
dc.subjectethnic minoritiesen
dc.subjectgeneticsen
dc.subjectnarrativeen
dc.subjectsickle cellen
dc.subjectthalassaemiaen
dc.subjectPaul Ricoeuren
dc.subjectsociologyen
dc.titleNarrative as re-fusion: making sense and value from sickle cell and thalassaemia traiten
dc.typeArticleen
dc.identifier.doihttp://dx.doi.org/10.1177/1363459316660861
dc.researchgroupUnit for the Social Study of Thalassaemia and Sickle Cellen
dc.peerreviewedYesen
dc.explorer.multimediaNoen
dc.funderESRC (Economic and Social Research Council)en
dc.projectidES/1035508/1en
dc.cclicenceCC-BY-NCen
dc.date.acceptance2016-06-05en
dc.researchinstituteInstitute for Allied Health Sciences Researchen


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