Now showing items 31-40 of 58
Sickle Cell and Thalassaemia: A Guide to School Policy (English Version)
This booklet has been produced based on research examining the experiences of young people with sickle cell disorder in schools in England. An important part of school inclusiveness is recognizing the importance of offering ...
Midwives and screening for haemoglobin disorders.
This chapter raises the issue of ethnicity in relation to selective screening for haemoglobin disorders such as sickle cell and beta-thalassaemia. The chapter begins with a description of sickle cell and thalassaemia, ...
OSCAR's Story: The History of Sickle Cell in Leicester
(Witley Press, 2008-07-11)
A social history of the local support group for sickle cell in Leicester, the Leicester Organization for Sickle Cell Anaemia Research, 1985-2008.
Narrative as re-fusion: making sense and value from sickle cell and thalassaemia trait
The moral turn within sociology suggests we need to be attentive to values and have a rapprochement with philosophy. The study of illness narratives is one area of sociology that has consistently addressed itself to moral ...
Critical realism, agency and sickle cell: case studies of young people with sickle cell disorder at school
Critical realism suggests that historical structures may operate as underlying generative mechanisms but not always be activated. This explains the near-absence of references to racism by black students with sickle cell ...
Ethnicity questions and antenatal screening for sickle cell/thalassaemia (EQUANS) in England : Observation and interview study.
Objectives To describe understandings that mothers and midwives have of ethnicity. To explore barriers to the successful implementation of ethnicity screening questions for sickle cell/thalassaemia. Design Observation ...
Ethnicity questions and antenatal screening for sickle cell/thalassaemia [EQUANS] in England: a randomized controlled trial of two questionnaires
(Taylor and Francis, 2006)
Abstract Concepts allied to ethnicity are increasingly coming under question as legitimate variables for use in health research. A randomised controlled trial of two ethnicity screening questions for ascertaining risk of ...
“I can die today, I can die tomorrow”: Lay perceptions of sickle cell disease in Kumasi, Ghana at a point of transition.
(Taylor and Francis, 2011-08)
Objective. To describe the lay meanings of sickle cell disease (SCD) in the Ashanti region of Ghana. Design. Depth interviews with 31 fathers of people with SCD; a focus group with health professionals associated with ...
Reported school experiences of young people living with sickle cell disorder in England.
A survey of 569 young people with sickle cell disorder (SCD) in England has found such pupils miss considerable periods of time from school, typically in short periods of two or three days. One-in-eight have school absences ...
The educational experiences of young people with sickle cell disorder: a commentary on the existing literature
(Taylor and Francis, 2007)
Sickle cell disease (SCD) is a chronic illness that in England disproportionately affects marginalized ethnic groups, but has yet to feature extensively within educational or disability research. This review of existing ...