A multidisciplinary conference of social science researchers working on sickle cell and thalassemia attracted 80 delegates from ten countries and included psychologists, sociologists, nurses, counselors, social policy ...

This paper will explore the experience of two sets of research projects involving members of black and minority ethnic communities in the role of researchers. The projects involved working with groups, first, in providing ...

This chapter raises the issue of ethnicity in relation to selective screening for haemoglobin disorders such as sickle cell and beta-thalassaemia. The chapter begins with a description of sickle cell and thalassaemia, ...

A survey of 569 young people with sickle cell disorder (SCD) in England has found such pupils miss considerable periods of time from school, typically in short periods of two or three days. One-in-eight have school absences ...

Sickle cell disease (SCD) is a chronic illness that in England disproportionately affects marginalized ethnic groups, but has yet to feature extensively within educational or disability research. This review of existing ...

Objective To describe the lay meanings of sickle cell disease in the Ashanti region of Ghana. Design Depth interviews with 31 fathers of people with sickle cell disease; a focus group with health professionals ...

Sickle cell is a leading genetic condition, both globally and in England. Little research has been conducted into the experiences of young people with sickle cell at school. A mixed methods study (May 2007–September 2008) ...

Young people with the serious chronic illness, such as sickle cell disorder, report high levels of negative experiences at school that have adverse effects on their health. Disclosure of sickle cell status appears unrelated ...