Now showing items 11-20 of 29
Deconstructing genetic counselling: haemoglobinopathy counsellors in the United Kingdom.
(International Institute for the Sociology of Law, 1998)
The paper begins with a brief description of sickle cell anaemia and beta-thalassaemia, the main haemoglobin disorders considered here. It then moves to a consideration of the bases of deconstruction as derived from Jacques ...
Genetic screening and ethnic minorities.
No theory of 'race' and ethnicity is without serious practical drawbacks for effecting selective screening for haemoglobin disorders. Universal screening raises issues about consent, resources, and eugenicist representation ...
Ethnic question and antenatal screening for sickle cell / thalassaemia (EQUANS) in England
(Athens Institute for Education and Research, 2005)
Genetic traits as pollution: ‘White English’ carriers of sickle cell or thalassaemia
From April 2004, the policy for neonatal screening for sickle cell in England has been to base the screening on universal principles (offer the screening to all new-born babies) rather than selective screening (an attempt ...
Midwives' and senior student midwives' knowledge of haemoglobinopathies in England.
Objective: To examine midwives' and senior student midwives' knowledge concerning sickle cell anaemia and beta-thalassaemia. Design: Survey using the Dyson Questionnaires. Setting: Study days on 26 sites across England ...
Clients-as-researchers: issues in haemoglobinopathy research.
(Whiting & Birch, 1995)
The haemoglobinopathies (sickle cell anaemia and beta-thalassaemia) are serious inherited blood disorders which in Britain predominantly, but by no means exclusively, affect people of African-Caribbean, Asian, Middle Eastern ...
Haemoglobinopathies, antenatal screening and the midwife.
(Mark Allen, 1996)
Key Points Lack of national enforceable and funded standards for screening for the haemoglobinopathies means that a great deal of discretion is devolved to the individual midwife. Naive conceptions of ‘race’ and lack of ...
First Conference of the Worldwide Initiative on Social Studies of Haemoglobinopathies (WISSH), SICKLE CELL: THE NEXT 100 YEARS
A multidisciplinary conference of social science researchers working on sickle cell and thalassemia attracted 80 delegates from ten countries and included psychologists, sociologists, nurses, counselors, social policy ...
Black community members-as-researchers: working with community groups in the research process.
(Whiting and Birch, 1997)
This paper will explore the experience of two sets of research projects involving members of black and minority ethnic communities in the role of researchers. The projects involved working with groups, first, in providing ...
Genetic knowledge: the contribution of sociologies
(Kluwer Academic / Plenum Press, 1999)
Different sociologies have a contribution to make in terms of identifying problems with untheorized notions of lay knowledge about genetics. This chapter reviews the insights afforded by different sociological traditions, ...