This study evaluates a temporary research-based intervention of universal ante-natal screening for sickle cell/thalassaemia in two areas of England of intermediate (1.29 per 10,000) and low (0.18 per 10,0000) expected ...

This paper is concerned with the formation of and processes of changes in professional identities, especially those professional groups associated with the new genetics, be they learned scientific professions, clinicians ...

For sickle cell and thalassaemia, social science is critical if we wish to understand the social context of - and how people experience - the two conditions. Sickle cell and thalassaemia are more than simply ‘being of’, ...

Sickle cell and thalassaemia are among the world’s leading genetic conditions with over five per cent of the world’s population carrying clinically significant haemoglobin gene variants (Modell and Darlison, 2008). In the ...

This paper addresses the educational implications of a study of midwives and senior student midwives knowledge of haemoglobinopathies. Knowledge was assessed from 850 multiple choice questionnaires. Respondents who had ...

Sickle cell anaemia and thalassaemia are genetic conditions which affect people from Black and ethnic minority communities in much greater numbers than White people, and they remain ill-understood. In this chapter Simon ...

The paper begins with a brief description of sickle cell anaemia and beta-thalassaemia, the main haemoglobin disorders considered here. It then moves to a consideration of the bases of deconstruction as derived from Jacques ...

No theory of 'race' and ethnicity is without serious practical drawbacks for effecting selective screening for haemoglobin disorders. Universal screening raises issues about consent, resources, and eugenicist representation ...

None available.