For sickle cell and thalassaemia, social science is critical if we wish to understand the social context of - and how people experience - the two conditions. Sickle cell and thalassaemia are more than simply ‘being of’, ...

Sickle cell and thalassaemia are among the world’s leading genetic conditions with over five per cent of the world’s population carrying clinically significant haemoglobin gene variants (Modell and Darlison, 2008). In the ...

A survey of 569 young people with sickle cell disorder (SCD) in England has found such pupils miss considerable periods of time from school, typically in short periods of two or three days. One-in-eight have school absences ...

Sickle cell disease (SCD) is a chronic illness that in England disproportionately affects marginalized ethnic groups, but has yet to feature extensively within educational or disability research. This review of existing ...

Sickle cell is a leading genetic condition, both globally and in England. Little research has been conducted into the experiences of young people with sickle cell at school. A mixed methods study (May 2007–September 2008) ...

Young people with the serious chronic illness, such as sickle cell disorder, report high levels of negative experiences at school that have adverse effects on their health. Disclosure of sickle cell status appears unrelated ...

It is with great pleasure that, as guest and current editor respectively, we introduce Ethnicity and Health’s collection on the haemoglobin disorders sickle cell and thalassaemia. Sickle cell and thalassaemia are among ...