Now showing items 1-10 of 11
Lessons for intermediate and low prevalence areas in England from the Ethnicity Questions and Antenatal Screening for sickle cell / thalassaemia [EQUANS] study
This study evaluates a temporary research-based intervention of universal ante-natal screening for sickle cell/thalassaemia in two areas of England of intermediate (1.29 per 10,000) and low (0.18 per 10,0000) expected ...
Genetic screening and ethnic minorities.
No theory of 'race' and ethnicity is without serious practical drawbacks for effecting selective screening for haemoglobin disorders. Universal screening raises issues about consent, resources, and eugenicist representation ...
Ethnic question and antenatal screening for sickle cell / thalassaemia (EQUANS) in England
(Athens Institute for Education and Research, 2005)
Territory, ancestry and descent: the politics of sickle cell disease.
Sociologists have long questioned the naturalness and stability of ‘ethnic groups’, suggesting that a concern with how they are socially constituted is more appropriate. However, the example of genetically based medical ...
Midwives and screening for haemoglobin disorders.
This chapter raises the issue of ethnicity in relation to selective screening for haemoglobin disorders such as sickle cell and beta-thalassaemia. The chapter begins with a description of sickle cell and thalassaemia, ...
Ethnicity questions and antenatal screening for sickle cell/thalassaemia (EQUANS) in England : Observation and interview study.
Objectives To describe understandings that mothers and midwives have of ethnicity. To explore barriers to the successful implementation of ethnicity screening questions for sickle cell/thalassaemia. Design Observation ...
Ethnicity questions and antenatal screening for sickle cell/thalassaemia [EQUANS] in England: a randomized controlled trial of two questionnaires
(Taylor and Francis, 2006)
Abstract Concepts allied to ethnicity are increasingly coming under question as legitimate variables for use in health research. A randomised controlled trial of two ethnicity screening questions for ascertaining risk of ...
Ethnicity, Disability and Chronic Illness
(Policy Press, 2019-04-10)
This chapter aims to: • Understand how patterns of disablement and chronic illness may partly derive from levels of material deprivation. • Illustrate why it may be important to look at the interactions not only between ...
Resignifing the sickle cell gene: narratives of genetic risk, impairment and repair
Connecting theoretical discussion with empirical qualitative work, this paper examines how sickle cell became a site of public health intervention in terms of ‘racialised’ risks. Historically, sickle cell became socio-politically ...
The feasibility of using ethnicity as a primary tool for antenatal selective screening for sickle cell disorders: pointers from the research evidence
The Department of Health has announced a linked antenatal and neonatal screening programme for haemoglobinopathies by 2004 in a comprehensive national plan for the National Health Service in Britain. In response the National ...