School of Allied Health Sciences
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Browsing School of Allied Health Sciences by Type "Technical Report"
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Item Open Access Ask me if I am okay: COVID-19 and the psychological and social impact of long-term shielding experiences of people with sickle cell disorders and their care givers(De Montfort University, 2021-06-17) Graham, Sadeh; McFee, Rachel; Horne, Francesca; Berghs, Maria; Dyson, Simon; Scott, Yates; Howson, Carlton; Rahman, HobbyThis pilot mixed methods study wanted to understand the psychological impact, as well as the social needs, of people with sickle cell disorders (SCD) who had been identified as ‘extremely clinically vulnerable’ by the government and had been asked to ‘shield’ at home from the 23rd of March 2020, to when shielding was officially lifted, on the 31st of March 2021. We were also interested in how parents who had SCD and parents of children with the condition were coping. We found that throughout the pandemic, while people’s very basic social needs were being met, their psychological health needs were not.Item Open Access Barriers and Enablers to Employment: Black Disabled Peoples Living with Sickle Cell Disorder Project.(De Montfort University, 2019-02-01) Berghs, Maria; Dyson, SimonFinal report of the Barriers and Enablers to Employment: Black Disabled Peoples Living with Sickle Cell Disorder Project.Item Embargo Homicide Investigation Report into the death of a child.(Birmingham Cross City Clinical Commissioning Group, 2014-09) Reed, Alison; Illingworth, Paul; Byford, Nigel; Billings, Garry; Thompson, ElaineWhen serious incidents occur the National Health Service (NHS) has a responsibility to ensure that an appropriate investigation takes place. The purpose being to review the circumstances which may have led to the serious incident, identify root causes, and highlight areas where improvements can be made in order to minimise the risk of such events happening in the future (National Patient Safety Agency (NPSA) 2010 & NHS Commissioning Board (NCB) 2013). In accordance with the National Serious Incident Framework (NPSA 2010 and NCB 2013) Birmingham & Solihull Mental Health NHS Foundation Trust commenced a serious incident investigation into the circumstances surrounding the care and treatment of P. The investigation panel worked to the agreed Terms of Reference, but also addressed the questions raised in Court by The Honourable Mrs Justice Thirlwall DBE. The investigating panel urge all organisations, but especially those organisations that have not reviewed their part in the life of P, to do so with reference to this investigation report. The report highlights a significant number of issues for consideration with some key themes emerging.Item Metadata only Possible protective effect of silicon content in beer in neurodegenerative diseases.(Centro de Información Cerveza y Salud. M-6601-2006., 2006-03) Gonzalez-Munoz, M. J.; Meseguer, I.; Pena-Fernandez, A.El estudio “Posible efecto protector del silicio contenido en la cerveza en las enfermedades neurodegenerativas”, realizado por la Dra. María José González Muñoz, Dra. Isabel Meseguer Soler y D. Antonio Peña Fernández, del Departamento de Nutrición, Bromatología y Toxicología de la Facultad de Farmacia de la Universidad de Alcalá, propone la teoría de que un aporte moderado de cerveza podría ser tenido en cuenta en los hábitos dietéticos de la población como un posible factor protector contra las enfermedades degenerativas, puesto que el silicio, un compuesto contenido en la cerveza, puede llegar a reducir la biodisponibilidad de los metales tóxicos que provocan estas enfermedades.Item Open Access "We di woman den, na we di suffer"(De Montfort University, 2019-06-19) Berghs, Maria; Gabba, Amelia Eva; Nyandemo, Sia Evelyn; Dyson, Simon; Fadlu-Deen, Gbrilla; Tregson-Roberts, GeorgeSierra Leone is thought to be one of the West African countries most affected by sickle cell disorders. Estimates state that one in four people carry the gene for sickle cell and between 1 to 2% of births are of children with the condition. Despite this, there has been a general public health and social neglect of the condition, so that prevalence is poorly understood and policy non-existent. This participatory qualitative research project, conducted in 2018 in two districts in the country, sought to understand both women’s experiences caring for children with the condition, as well as what the needs were of women who had the condition. The findings illustrated that a historical memory of the condition and its effects exists in the intergenerational memories and practices of people. This is important to learn from to combat stigmatisation of women and people who have the condition. However, past expertise and medical knowledge currently co-exist in isolation from each other, with access to proper healthcare unavailable in most parts of the country. This has led to an inability to get a correct medical diagnosis, no advice about how to live with the condition and an inability to access specialized medical and rehabilitative services. These failures in care have led to early deaths and disablement, with the result that the general public fear the condition. A neglect of reproductive justice and the relational implications for women with the condition was also apparent in the high number of deaths of women and infants with sickle cell. Lastly, due to the work of the voluntary and medical sector, there is increasing awareness in parents, schools and communities of how the total environment is crucial for holistic management of sickle cell conditions in a low- income country. However, it is women who are still mostly responsible for ensuring that their children access a better quality of life and women who still incur moral blame and shame for their ill-health and that of their children.