Browsing by Author "Dunbar, Helena"

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    Coming 'Home": Place Bonding for parents accessing or considering hospice based care
    (Health and Place, 2019-04-22) Dunbar, Helena; Carter, Bernie; Brown, Jayne
    Little literature examines the cognitive journey taken by parents considering/receiving hospice care for their child. A constructivist grounded theory study explored 38 parents’ views of considering/using a children’s hospice. Data analysed from focus groups and interviews identified three main concepts. The focus of this paper is identified as Coming ‘Home’. This concept depicts the desire and the sense of searching that parents experienced in trying to find a place, other than their actual home, where their child could access a caring environment and their parents received some respite from caregiving. Despite there being a paradox associated with hospice-based respite, once they had crossed the threshold the parents bonded with the place and experienced rootedness and familiarity. The hospice became a place of living and belonging; a place where they could ‘come home’.
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    The contemporary prescriber: improving working relationships between disciplines.
    (2019-06-24) Harrison, Tim; Dunbar, Helena; Ford, Karen
    UK policy promotes collaborative working and integrated care, with professions working from common competency frameworks. Interprofessional Education is acknowledged as an effective approach to enabling collaborative practice. Key to success is the opportunity for genuine practical engagement and interaction, allowing development of mutual respect and insight into the perspectives of other. Traditional teaching replaced with online and e-learning technologies. Students are divided into multidisciplinary teams to explore various aspects of a complex patient case. Facilitated discussion between teams who have explored different aspects of the case, a plenary session, reflection and personal development planning conclude the cycle of learning. Descriptive statistics and thematic analysis are being used to assess student’s perceived changes in knowledge and confidence relating learning outcomes along with exploration of skill and knowledge acquisition.
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    Experiencing place identity and place belongingness at a children’s hospice: Parents’ perspectives
    (Sage, 2020-03-27) Dunbar, Helena; Carter, Bernie
    Children’s hospices are key players in the provision of palliative care services for families with children with life-limiting conditions (LLCs). However, evidence suggests that some of the negative terminology/language which surrounds the notions of palliative and hospice care may contribute to the lack of uptake of hospice services by families. This article reports two elements of place bonding: parents’ experiences of place identity and place belongingness at a children’s hospice in a region in England. Underpinned by a constructivist grounded theory methodology, focus groups were undertaken with 24 parents of children with LLCs accessing a children’s hospice. Despite initial reservations associated with the identity of the hospice, parents described how and why their view changed and therefore consequently how they were able to experience the hospice differently. This article demonstrates how parents’ views of the identity of the hospice change and how the hospice becomes a place where parents experience a sense of belongingness.
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    P-81 ‘place bonding’- a new model to understanding parental decision making when accessing a hospice
    (BMJ, 2018-11-01) Dunbar, Helena; dunbar
    Respite/short breaks have been recognized as an important supportive service in paediatric palliative care (Knapp & Contro, 2009; Ling, 2012). In some countries, for example the UK, hospices are key players in this delivery. Despite evidence that supports short break services in hospices (Kirk & Pritchard, 2012) the literature suggests that there is varied access and uptake of such provision (Smith, Graham, & Herbert, 2017; Devanney & Bardley, 2012; Knapp, Shenkman, Marcu et al., 2009). A two-phase grounded theory study was conducted in one region in England, to explore parental experiences and perceptions of children’s hospices, the barriers and facilitators to access and the characteristics which parents wanted from hospice services. A two phase grounded theory study (Charmaz, 2014) was conducted: Phase 1 used focus groups to collect data from parents of children already accessing the hospice (n=24) and in Phase 2 semi-structured interviews were conducted with parents of children who did not use the hospice (n=7) and parents who had previous experience of using a hospice (n=7). Analysis of the data identified three main themes: Coming ‘Home’; This is Living Now; and Moving Forward. A grounded theory model of place bonding was developed which illustrates the cognitive journey and characteristics which are important for parents of children with life-limiting conditions when considering/receiving hospice care for their child. Finding a place where they belonged and felt at ‘home’ made the decision to accept help in caring for their child with a life-limiting condition more acceptable.
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    Parent-led strategies supporting personal well-being when caring for a child with a life-limiting condition: A Scoping review
    (Sage, 2021-08-09) Oakley, Sarah; Dunbar, Helena; de Vries, Kay
    The objectives of this review were to identify strategies initiated by parents of children with life-limiting conditions to support their own well-being at home and to describe the impact of these strategies on parental well-being. A systematic scoping review was performed using PRISMA-ScR guidelines, identifying 15 relevant studies that fit the inclusion and exclusion criteria. There were no studies that specifically assessed how parents support their own well-being; however, the 15 identified studies did provide pertinent data secondary to the primary aims of each study. This resulted in the identification of 14 parent-initiated strategies which were grouped thematically into 4 categories: (i) social experience and peer support, (ii) information and management techniques, (iii) reframed perspectives and (iv) prioritising own needs. Overall, there was some evidence of parents initiating specific, individualised and useful strategies to supporting their well-being. Notably lacking was any empirical evaluation as to the effectiveness of these strategies and the wider factors associated with them. Further research is required to assess how parents support their personal well-being in daily life and how these strategies can be implemented alongside service-initiated support to ensure full parental well-being.
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    Place Bonding - Parents' Journeys towards a sense of rootedness in children's hospice care
    (Hayward group, 2017-05) Dunbar, Helena
    A poster presentation presenting the findings of the results of PhD thesis in which a new framework has been developed which illustrates the bonds which develop between parents of children with life-limiting conditions and a children's hospice.
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    Place Bonding in Children's Hospice Care
    (BMJ, 2017-03-01) Dunbar, Helena
    Relative to the numbers of children with life limiting illness the overall numbers accessing hospices are low. The poster explains a study which explored parents perspectives of hospices in one region in England and identify characteristics of services that parents wanted
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    Place Bonding in Children's Hospice Care Poster presentation Number 180
    (3RD ICPCN CONFERENCE, 2018-06) Dunbar, Helena
    Background: Relative to the numbers of children with LLI the overall numbers accessing hospices are low. Aim: The study's aim was to explore parents’ perspectives of hospices in one region in England and identify characteristics of services that parents wanted Methods: A two phase qualitative study underpinned by a constructivist grounded theory methodology was employed. Phase 1 - focus groups were run with 24 parents of children accessing the hospice. Phase 2 semi-structured interviews were conducted with 7 parents who did not have any experience of a hospice and a further 7 parents who had some awareness. Results: Three main themes were identified. Coming Home depicts the desire and searching that parents had in seeking out a place, other than their actual home, where their child could be cared for. Coming to terms with this was a struggle and certain characteristics needed to be in place before parents would accept respite. This is living Now depicts the overall sense that parents with a child with a LLI are living life as it is now not as they had planned it. Life is described as a fight, dictated by routines, loss of identity, friendships, potential. Moving forward portrays the idea that there is however a clear sense of direction of travel into a future where the journey is much longer than anticipated, anxieties about the future and transition exist. Discussion - A model of place bonding was developed which offers new insights into the journey that parents take when deciding whether or not to accept help. Five dimensions - familiarity, belongingness, identity, association and rootedness are described which culminate in a sense of rootedness and attachment to the hospice and when present led parents to a sense that they had found in the hospice a place where they felt at 'home'.
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    Place Bonding in Children's Hospice Care- a qualitative study
    (BMJ, 2018-08-14) Dunbar, Helena; Carter, Bernie; Brown, Jayne
    Background Limited knowledge exists of parents’ perceptions and experiences of children’s hospices and how these contribute to the varied access and uptake of services. Aim This study aimed to explore parents’ perspectives and experiences of a hospice, to understand the barriers and/or facilitators to accessing a hospice, and what characteristics parents wanted from hospice provision. Methods A two-phase qualitative study underpinned by a constructivist grounded theory methodology was employed. Phase 1 used focus groups to collect data from parents of children already accessing the hospice (n=24). Phase 2 used in-depth semi-structured interviews with parents of children who did not use the hospice (n=7) and with parents who had previous experience of using a hospice (n=7). Results A grounded theory of place bonding was developed which illustrates the cognitive journey taken by parents of children with life-limiting conditions considering/receiving hospice care for their child. Conclusions Finding a place where they belonged and felt at ‘home’ made the decision to accept help in caring for their child with a life-limiting condition more acceptable. The theory of place bonding offers children’s hospices a new perspective from which to view how parents access, accept and build relationships at the hospice.
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    ‘Place Bonding’: Parents’ Journeys Towards a Sense of Rootedness in Children’s Hospice Care
    (De Montfort University, 2016-11) Dunbar, Helena
    The number of children with life-limiting and life-threatening conditions in the UK is rising. In response to the reality that many children are living longer and complexities of care are increasing, providers of palliative care services are tasked with developing flexible approaches to delivery of care. Children’s hospices are key players in this. However, evidence suggests that only a small percentage of parents of children with life-limiting and life-threatening conditions choose to access hospice services. This study explored parents’ perspectives of existing hospice and palliative care services in one region of England. Barriers and facilitators to accessing services, the types and characteristics of hospice services parents wanted and how best these services could be delivered to meet the needs of the population of children with life-limiting and life-threatening conditions were considered. A two phase qualitative study underpinned by a constructivist grounded theory methodology was employed for the study. In Phase 1 focus groups were used to collect data from twenty four parents of children accessing services at the hospice. In Phase 2 in-depth semi-structured interviews were conducted with seven parents of children who did not use services at the hospice and with a further seven parents who had either previous experience of the hospice or were using a hospice outside of the region. Data derived from the interviews were analysed using a grounded theory method. Three main themes were generated: Coming ‘Home’; This is Living Now; and Moving Forward. A theory of place bonding was developed which reflects how affective bonds develop over time between parents of children with life-limiting conditions and the hospice. The five dimensions of place bonding: place familiarity, place identity, place belongingness and place association led to a deeper sense of place rootedness and established bonds with the hospice. Finding a place where they belonged and where they felt at ‘home’ made the decision to accept help in caring for their child with a life-limiting condition more manageable. The thesis concludes by acknowledging the importance of place bonding and its potential to influence practice for children’s hospices and also in providing a platform for service development for other respite situations for children and young people with life-limiting conditions.
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    A sense of belonging: The importance of fostering student nurses affective bonds
    (Sage, 2017-11-19) Dunbar, Helena; Carter, Bernie
    Fundamental to child health care is the next generation of professionals who will be providing services and supporting children and families. Nurses comprise the largest proportion of the professionally qualified workforce, therefore it is imperative that the training of children’s nurses is both effective and affective. Nursing students are not ‘traditional’ students in the sense of higher education as they are expected to learn and achieve in two different environments, academic and placement. While maintaining a pedagogy which meets academic standards nurse lecturers must also train nurses for practice and for working within a diverse profession. Furthermore, student nurses must adapt to and experience student life while grasping and understanding the realities of what it means to be a nurse.
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    Undertaking Doctoral Research with Children and Young People with Life-limiting or Life-threatening Conditions
    (Wiley, 2019-11-25) Harris, N.; Blackburn, M.; Noyes, J.; Aldridge, J.; Lapwood, S.; Dunbar, Helena; Price, J.; Mitchell, S.; Chambers, L.; Bluebond-Langer, M.
    No abstract available
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    Using evidence from qualitative studies
    (Elsevier, 2019-09-24) Carter, B.; Dunbar, Helena