Place Bonding in Children's Hospice Care Poster presentation Number 180

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dc.cclicenceCC-BY-NCen
dc.contributor.authorDunbar, Helena
dc.date.acceptance2018-06
dc.date.accessioned2020-03-06T14:16:46Z
dc.date.available2020-03-06T14:16:46Z
dc.date.issued2018-06
dc.description.abstractBackground: Relative to the numbers of children with LLI the overall numbers accessing hospices are low. Aim: The study's aim was to explore parents’ perspectives of hospices in one region in England and identify characteristics of services that parents wanted Methods: A two phase qualitative study underpinned by a constructivist grounded theory methodology was employed. Phase 1 - focus groups were run with 24 parents of children accessing the hospice. Phase 2 semi-structured interviews were conducted with 7 parents who did not have any experience of a hospice and a further 7 parents who had some awareness. Results: Three main themes were identified. Coming Home depicts the desire and searching that parents had in seeking out a place, other than their actual home, where their child could be cared for. Coming to terms with this was a struggle and certain characteristics needed to be in place before parents would accept respite. This is living Now depicts the overall sense that parents with a child with a LLI are living life as it is now not as they had planned it. Life is described as a fight, dictated by routines, loss of identity, friendships, potential. Moving forward portrays the idea that there is however a clear sense of direction of travel into a future where the journey is much longer than anticipated, anxieties about the future and transition exist. Discussion - A model of place bonding was developed which offers new insights into the journey that parents take when deciding whether or not to accept help. Five dimensions - familiarity, belongingness, identity, association and rootedness are described which culminate in a sense of rootedness and attachment to the hospice and when present led parents to a sense that they had found in the hospice a place where they felt at 'home'.en
dc.funderNo external funderen
dc.identifier.citationDunbar H (2018) Place Bonding in Children's Hospice Care Poster Presentation Number 180. 3rd ICPCN Conference Book of Abstracts. ICPCN.en
dc.identifier.urihttps://dora.dmu.ac.uk/handle/2086/19327
dc.peerreviewedNoen
dc.publisher3RD ICPCN CONFERENCEen
dc.researchinstituteInstitute of Health, Health Policy and Social Careen
dc.subjectChildrens palliative careen
dc.subjectChildren's Hospicesen
dc.subjectPlace bondingen
dc.titlePlace Bonding in Children's Hospice Care Poster presentation Number 180en
dc.typeConferenceen

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