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dc.contributor.authorCulley, Lorraineen
dc.contributor.authorLaw, Carolineen
dc.contributor.authorHudson, Nickyen
dc.contributor.authorDenny, E.en
dc.contributor.authorMitchell, H.en
dc.contributor.authorBaumgarten, M.en
dc.contributor.authorRaine-Fenning, N.en
dc.date.accessioned2013-07-31T15:06:32Z
dc.date.available2013-07-31T15:06:32Z
dc.date.issued2013-07
dc.identifier.citationCulley, L., Law, C., Hudson,N., Denny, E., Mitchell, H., Baumgarten, M. and Raine-Fenning, N. (2013) The social and psychological impact of endometriosis on women's lives: a critical narrative review . Human Reproduction Update ; 19 (6), pp. 625-639en
dc.identifier.urihttp://hdl.handle.net/2086/8845
dc.descriptionThe attached file is a pre – copy – editing, author produced PDF of an article accepted for publication in Human Reproduction Update following peer review. The definitive publisher – authenticated version (Culley, L, Law, C, Hudson, N, Denny, E, Mitchell, H, Baumgarten, M, Raine – Fenning, N (2013) The social and psychological impact of endometriosis on women’s lives: a critical narrative review. Hum. Reprod. Update 19 (6): 625 – 639) is available online at: http://humupd.oxfordjournals.org/content/19/6/625.short
dc.description.abstractBACKGROUND Endometriosis is a chronic condition affecting between 2 and 17% of women of reproductive age. Common symptoms are chronic pelvic pain, fatigue, congestive dysmenorrhoea, heavy menstrual bleeding and deep dyspareunia. Studies have demonstrated the considerable negative impact of this condition on women's quality of life (QoL), especially in the domains of pain and psychosocial functioning. The impact of endometriosis is likely to be exacerbated by the absence of an obvious cause and the likelihood of chronic, recurring symptoms. The aims of this paper are to review the current body of knowledge on the social and psychological impact of endometriosis on women's lives; to provide insights into women's experience of endometriosis; to provide a critical commentary on the current state of knowledge and to make recommendations for future psycho-social research. METHODS The review draws on a method of critical narrative synthesis to discuss a heterogeneous range of both quantitative and qualitative studies from several disciplines. This included a systematic search, a structured process for selecting and collecting data and a systematic thematic analysis of results. RESULTS A total of 42 papers were included in the review; 23 used quantitative methods, 16 used qualitative methods and 3 were mixed methods studies. The majority of papers came from just four countries: UK (10), Australia (8), Brazil (6) and the USA (5). Key categories of impact identified in the thematic analysis were diagnostic delay and uncertainty; ‘QoL’ and everyday activities; intimate relationships; planning for and having children; education and work; mental health and emotional wellbeing and medical management and self-management. CONCLUSIONS Endometriosis has a significant social and psychological impact on the lives of women across several domains. Many studies have methodological limitations and there are significant gaps in the literature especially in relation to a consideration of the impact on partners and children. We recommend additional prospective and longitudinal research utilizing mixed methods approaches and endometriosis-specific instruments to explore the impact of endometriosis in more diverse populations and settings. Furthermore, there is an urgent need to develop and evaluate interventions for supporting women and partners living with this chronic and often debilitating condition.en
dc.description.sponsorshipResearch funded by the ESRC ES/J003662/1.en
dc.language.isoenen
dc.publisherOxford Journalsen
dc.subjectendometriosis, socia,l psychological, quality of life, chronic illnessen
dc.subjectendometriosisen
dc.subjectsocialen
dc.subjectpsychologicalen
dc.subjectquality of lifeen
dc.subjectchronic illnessen
dc.titleThe social and psychological impact of endometriosis on women's lives: a critical narrative reviewen
dc.typeArticleen
dc.identifier.doihttp://dx.doi.org/10.1093/humupd/dmt027
dc.researchgroupReproduction Research Groupen
dc.peerreviewedYesen
dc.researchinstituteCentre for Reproduction Research (CRR)en


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