The haemoglobinopathies (sickle cell anaemia and beta-thalassaemia) are serious inherited blood disorders which in Britain predominantly, but by no means exclusively, affect people of African-Caribbean, Asian, Middle Eastern ...

Sociologists have long questioned the naturalness and stability of ‘ethnic groups’, suggesting that a concern with how they are socially constituted is more appropriate. However, the example of genetically based medical ...

Key Points Lack of national enforceable and funded standards for screening for the haemoglobinopathies means that a great deal of discretion is devolved to the individual midwife. Naive conceptions of ‘race’ and lack of ...

Successive UK governments have sought to support expanded teaching of science, technology, engineering and mathematics (STEM) subjects within university curricula. There is an increased expectation that the education of ...

Previous policy oriented and sociological research on sickle cell and thalassaemia disorders has tended to focus on how carrier status impacts on reproductive choices or decisions related to antenatal screening. We know ...

A multidisciplinary conference of social science researchers working on sickle cell and thalassemia attracted 80 delegates from ten countries and included psychologists, sociologists, nurses, counselors, social policy ...

This paper will explore the experience of two sets of research projects involving members of black and minority ethnic communities in the role of researchers. The projects involved working with groups, first, in providing ...

A second edition of the Guide to School Policy on Sickle Cell and Thalassaemia