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Sickle cell anaemia and deaths in custody in the UK and USA
(Blackwell, 2006)
An unexplained death in custody represents an important focal point for public scrutiny of the criminal justice system, especially when excess deaths occur in those of minority ethnic descent. Sickle cell anaemia is a ...
Blood relations: educational implications of sickle cell anaemia and thalassaemia.
(Routledge/Open University Press, 1992)
Sickle cell anaemia and thalassaemia are genetic conditions which affect people from Black and ethnic minority communities in much greater numbers than White people, and they remain ill-understood. In this chapter Simon ...
Genetic traits as pollution: ‘White English’ carriers of sickle cell or thalassaemia
(Routledge, 2007)
From April 2004, the policy for neonatal screening for sickle cell in England has been to base the screening on universal principles (offer the screening to all new-born babies) rather than selective screening (an attempt ...
Clients-as-researchers: issues in haemoglobinopathy research.
(Whiting & Birch, 1995)
The haemoglobinopathies (sickle cell anaemia and beta-thalassaemia) are serious inherited blood disorders which in Britain predominantly, but by no means exclusively, affect people of African-Caribbean, Asian, Middle Eastern ...
Critical realism, agency and sickle cell: case studies of young people with sickle cell disorder at school
(2013-07-26)
Critical realism suggests that historical structures may operate as underlying generative mechanisms but not always be activated. This explains the near-absence of references to racism by black students with sickle cell ...
Ethnicity questions and antenatal screening for sickle cell/thalassaemia (EQUANS) in England : Observation and interview study.
(Routledge, 2007)
Objectives
To describe understandings that mothers and midwives have of ethnicity. To explore barriers to the successful implementation of ethnicity screening questions for sickle cell/thalassaemia.
Design
Observation ...
The educational experiences of young people with sickle cell disorder: a commentary on the existing literature
(Taylor and Francis, 2007)
Sickle cell disease (SCD) is a chronic illness that in England disproportionately affects marginalized ethnic groups, but has yet to feature extensively within educational or disability research. This review of existing ...
Disclosure and sickle cell disorder: a mixed methods study of the young person with sickle cell at school.
(Elsevier, 2010-05-08)
Sickle cell is a leading genetic condition, both globally and in England. Little research has been conducted into the experiences of young people with sickle cell at school. A mixed methods study (May 2007–September 2008) ...
Ethnicity, Disability and Chronic Illness
(Policy Press, 2019-04-10)
This chapter aims to:
• Understand how patterns of disablement and chronic illness may partly derive from levels of material deprivation.
• Illustrate why it may be important to look at the interactions not only between ...
"Talk to me. There's two of us": Fathers and sickle cell screening.
(SAGE (British Sociological Association), 2015-02-03)
Studying kinship has involved doing family, displaying family, and ‘displaying family’ as a sensitizing concept to understand modalities troublesome to display. Fathers at ante-natal screening clinics for sickle cell are ...
