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dc.contributor.authorDyson, Simon
dc.identifier.citationFirst Conference of the Worldwide Initiative on Social Studies of Haemoglobinopathies (WISSH), SICKLE CELL: THE NEXT 100 YEARS American Journal of Preventive Medicine 41 (6S4): S413-S416.en
dc.descriptionReport of the First WISSH (Worldwide Initiative for the Social Study of Haemoglobinopathies)Conference held at De Montfort University, UK in April 2010en
dc.description.abstractA multidisciplinary conference of social science researchers working on sickle cell and thalassemia attracted 80 delegates from ten countries and included psychologists, sociologists, nurses, counselors, social policy analysts, health economists, public health experts, as well as members of sickle cell nongovernmental organizations (NGOs). The purpose of the conference, held at De Montfort University in the United Kingdom (U.K.) in April 2010, was to apply quantitative and qualitative social research methods to understand the experiences of people living with sickle cell disease (SCD) or thalassemia, the contextual factors that can affect their individual well-being, and the health, educational, legal, and social policies that affect them. In particular, emphasis was placed on understanding the influences of “race” (as a social construct), class, and poverty on outcomes among people with sickle cell disease or thalassemia.en
dc.description.sponsorshipSimon M. Dyson acknowledges the UK’s Economic and Social Science Research Council Grant Number RES-000-23-1486.The conference organizers acknowledge the receipt of an unrestricted educational grant from Novartis Oncology that enabled UK NGOs to attend the conference. Publication of this article was supported by the Centers for Disease Control and Prevention through a Cooperative Agreement with the Association for Prevention Teaching and Research award # 09-NCBDDD-01.en
dc.subjectsickle cellen
dc.subjectsocial scienceen
dc.subjectinternational conferenceen
dc.subjectDe Montfort Universityen
dc.titleFirst Conference of the Worldwide Initiative on Social Studies of Haemoglobinopathies (WISSH), SICKLE CELL: THE NEXT 100 YEARSen
dc.researchgroupUnit for the Social Study of Thalassaemia and Sickle Cellen
dc.researchinstituteInstitute for Allied Health Sciences Researchen

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