Now showing items 41-50 of 54
Reported school experiences of young people living with sickle cell disorder in England.
A survey of 569 young people with sickle cell disorder (SCD) in England has found such pupils miss considerable periods of time from school, typically in short periods of two or three days. One-in-eight have school absences ...
The educational experiences of young people with sickle cell disorder: a commentary on the existing literature
(Taylor and Francis, 2007)
Sickle cell disease (SCD) is a chronic illness that in England disproportionately affects marginalized ethnic groups, but has yet to feature extensively within educational or disability research. This review of existing ...
“I can die today, I can die tomorrow”: Lay perceptions of sickle cell disease in Kumasi, Ghana at a point of transition.
(Routledge (Taylor & Francis), 2012-01)
Objective To describe the lay meanings of sickle cell disease in the Ashanti region of Ghana. Design Depth interviews with 31 fathers of people with sickle cell disease; a focus group with health professionals ...
Disclosure and sickle cell disorder: a mixed methods study of the young person with sickle cell at school.
Sickle cell is a leading genetic condition, both globally and in England. Little research has been conducted into the experiences of young people with sickle cell at school. A mixed methods study (May 2007–September 2008) ...
School ethos and variation in health experience of young people with sickle cell disorder at school
Young people with the serious chronic illness, such as sickle cell disorder, report high levels of negative experiences at school that have adverse effects on their health. Disclosure of sickle cell status appears unrelated ...
Social theory and applied health research
(Open University Press, 2006)
Children and young people in hospitals: Doing youth work in medical settings.
The feasibility of using ethnicity as a primary tool for antenatal selective screening for sickle cell disorders: pointers from the research evidence
The Department of Health has announced a linked antenatal and neonatal screening programme for haemoglobinopathies by 2004 in a comprehensive national plan for the National Health Service in Britain. In response the National ...
Sickle Cell and the Social Sciences: Health, Racism and Disablement
(Routledge (Taylor & Francis), 2019-04-15)
Sickle cell disease (SCD) is a severe chronic illness and one of the world’s most common genetic conditions, with 400,000 children born annually with the disorder, mainly in Sub-Saharan Africa, India, Brazil, the Middle ...