Key Points Lack of national enforceable and funded standards for screening for the haemoglobinopathies means that a great deal of discretion is devolved to the individual midwife. Naive conceptions of ‘race’ and lack of ...

Successive UK governments have sought to support expanded teaching of science, technology, engineering and mathematics (STEM) subjects within university curricula. There is an increased expectation that the education of ...

This chapter is based on research carried out by Simon Dyson in the early 1980s into the problems facing the parents of children with mental handicaps, particularly in their contact with professionals. In the first part ...

Previous policy oriented and sociological research on sickle cell and thalassaemia disorders has tended to focus on how carrier status impacts on reproductive choices or decisions related to antenatal screening. We know ...

A multidisciplinary conference of social science researchers working on sickle cell and thalassemia attracted 80 delegates from ten countries and included psychologists, sociologists, nurses, counselors, social policy ...

This paper will explore the experience of two sets of research projects involving members of black and minority ethnic communities in the role of researchers. The projects involved working with groups, first, in providing ...

Different sociologies have a contribution to make in terms of identifying problems with untheorized notions of lay knowledge about genetics. This chapter reviews the insights afforded by different sociological traditions, ...