Browsing by Author "Brown, Jayne"
Now showing 1 - 20 of 42
Results Per Page
Sort Options
Item Open Access 2021 Report of the Evaluation of the Work.Live.Leicestershire Programme(De Montfort University, 2021-01-31) Blair, Krista; McGill, George; Gkiontsi, Dimitra; de Vries, Kay; Brown, Jayne; Clayton, David; Coleby, Dawn; Dunn, Andrew; Oviasu, Osaretin; Padley, WendyThe Work.Live.Leicestershire (WiLL) programme provided help to economically inactive or unemployed people in Leicestershire to move into job search, training, or employment. The programme aimed to help people into work or learning by improving their health and wellbeing, social engagement, and skills and work experience, and by supporting people as they volunteered, job searched or started a business. The programme was open to residents of rural Leicestershire who were economically inactive or unemployed, and targeted the areas of Hinckley and Bosworth, North West Leicestershire, Melton, and Harborough. As of November 2020, the programme had registered details of 535 participants1 (263 men and 266 women) across all age groups. 152 participants were 24 or under, and 158 participants were 51 or over. Of the participants registered, some will have just joined the programme, some will be part way through the programme, and some will have left the programme at various points after their initial engagement with WiLL. This report discusses findings from the second year of De Montfort University’s evaluation, focussing on programme results and how the programme supported people to address barriers to moving into work or learning. The programme is ongoing, and this report draws on data from both participants who had left the programme and those whose support was in progress.Item Metadata only A CBT-based training module for UK health visitors who support parents with excessively crying babies: development and initial evaluation(Cambridge University Press, 2024-04-19) St James-Roberts, Ian; Griffiths, Sarah; Watson, Maggie; White, Charlotte; Brown, JayneBackground: Parents report that around 20% of infants cry a lot without apparent reason during the first four postnatal months. This crying can trigger parental depression, breastfeeding cessation, overfeeding, impaired parent–child relationships and child development, and infant abuse. The Surviving Crying (SC) cognitive behaviour therapy (CBT)-based materials were developed in earlier research to improve the coping, wellbeing and mental health of parents who judge their infant to be crying excessively. Aim: This study set out to: develop a health visitor (HV) training module based on the SC materials, tailored to fit health visiting; assess whether HVs could deliver a SC-based service successfully; confirm whether parents gained similar benefits to those in the earlier study; prepare for a controlled trial of the SC-based service. Methods: A training module was developed to enable HVs to deliver the SC materials, much of it provided online. Ten HVs took the training module (‘SC HVs’). They and the Institute of Health Visiting provided feedback to refine it. SC HV delivery of the CBT sessions to parents with excessively crying babies was assessed using a standardised test. Parental wellbeing was measured using validated questionnaires. Parents and SC HVs evaluated the effectiveness of the SC service using questionnaires or interviews. Findings: The study produced the intended training module. Most SC HVs completed the training, and 50% delivered the SC-based service successfully. Both training and delivery were disrupted by the Covid-19 pandemic, illness and work pressures. Replicating earlier findings: most parents’ anxiety and depression scores declined substantially after receiving the SC service; improvements in parents’ confidence, frustration and sleep were found; and all parents and the SC HVs interviewed found the SC service useful and agreed it should be included in the National Health Service. A controlled trial of the resulting SC service is underway.Item Open Access Administering anticipatory medications in end-of-life care: A qualitative study of nursing practice in the community and in nursing homes(Sage, 2014-07-28) Wilson, Eleanor; Morbey, Hazel; Brown, Jayne; Payne, Sheila; Seale, Clive; Seymour, JaneBackground: In the United Kingdom, an approach to improving end-of-life care has been the introduction of ‘just in case’ or ‘anticipatory’ medications. Nurses are often responsible for deciding when to use anticipatory medications, but little is known about their experiences. Aim: To examine nurses’ decisions, aims and concerns when using anticipatory medications. Design: An ethnographic study in two UK regions, using observations and interviews with nurses working in community and nursing home teams (n = 8). Findings: Observations (n = 83) and interviews (n = 61) with community nurses. Nurses identified four ‘conditions’ that needed to be established before they implemented anticipatory medications: (1) irreversibility; (2) inability to take oral medication; (3) where the patient was able, they should consent and (4) decision had to be independent of demands or requests from patient’s relatives. By using anticipation medications, nurses sought to enable patients to be ‘comfortable and settled’ by provision of gradual relief of symptoms at the lowest dose possible. They aimed to respond quickly to needs, seeking to avoid hospital admission or medical call-out, while adhering to local prescribing policies. Worries included distinguishing between pain and agitation, balancing risks of under- and over-medication and the possibility of hastening death. Conclusion: Nurses take a leading role in the administration of anticipatory medications. Nurses apply consideration and caution to the administration of anticipatory medications but some experience emotional burden. Education, training and experience played a role in the nurses’ confidence and should continue to be central to efforts to improving the quality of palliative care in the community and nursing homes.Item Metadata only Bringing Caring and competence into focus in gerontological nursing: A longitudinal, multi-method study.(Elsevier, 2008) Brown, Jayne; Nolan, M; Davies, SItem Open Access Building and sustaining work engagement – a participatory action intervention to increase work engagement in nursing staff(2017-06-15) Knight, Caroline; Patterson, Malcolm; Dawson, Jeremy; Brown, JayneThis study evaluated whether a participatory action research intervention with nursing staff on acute care older people National Health Service wards in the United Kingdom was effective for increasing work engagement. Mediation analyses between job resources (social support, influence in decisionmaking), job demands, work-related needs (autonomy, competence, relatedness), and work engagement explored the presumed psychological mechanisms underlying the intervention. A non-randomized, matched control group, pretest, post-test design involved three intervention and five control wards. A significant decrease in relatedness, and a borderline significant decrease in competence, was observed in the intervention group compared to the control group, with no effect on work engagement (N = 45). Work-related needs mediated between resources and work engagement, supporting the job demands-resources model and self-determination theory as an underlying explanatory theory. Intervention implementation was difficult, highlighting the need for participant and organizational readiness for change, and strong management support. This is the first known study to apply participatory techniques to increase work engagement in nursing staff and explore the underlying explanatory psychological mechanisms, offering a novel means of taking work engagement research forward. Crucially, it highlights the challenges involved in intervention research and the importance of including evaluations of intervention implementation alongside statistical evaluations to avoid erroneous conclusionsItem Metadata only Caring for a Child with Learning Disabilities Over a Prolonged Period of Time: An Exploratory Survey on the Experiences and Health of Older Parent Carers Living in Scotland(2013-09) Cairns, Deborah; Brown, Jayne; Tolson, D.; Darbyshire, ChrisBackground The negative health impacts of prolonged caregiving are widely reported. However, there is a paucity of evidence concerning the impacts of a lifetime of caring on older parents of offspring with learning disabilities. Design and Methods An exploratory postal survey including the Medical Outcome Study (Short Form) 36 version 2 (SF-36v2) was completed by 100 older parent carers. The reported survey is part of a larger mixed method study including in-depth interviews. Results The majority of respondents (n = 91) reported caring for 50 h or more per week with multiple caregiving duties. While the SF-36v2 reported physical health of older parent carers to be similar to UK norms, their ental health was significantly reduced. Implications for practice These important findings highlight the vulnerability of ageing parents of offspring with learning disabilities. This previously underreported situation warrants further investigation and urgent attention from health and social care agencies and professionals.Item Open Access Coming 'Home": Place Bonding for parents accessing or considering hospice based care(Health and Place, 2019-04-22) Dunbar, Helena; Carter, Bernie; Brown, JayneLittle literature examines the cognitive journey taken by parents considering/receiving hospice care for their child. A constructivist grounded theory study explored 38 parents’ views of considering/using a children’s hospice. Data analysed from focus groups and interviews identified three main concepts. The focus of this paper is identified as Coming ‘Home’. This concept depicts the desire and the sense of searching that parents experienced in trying to find a place, other than their actual home, where their child could access a caring environment and their parents received some respite from caregiving. Despite there being a paradox associated with hospice-based respite, once they had crossed the threshold the parents bonded with the place and experienced rootedness and familiarity. The hospice became a place of living and belonging; a place where they could ‘come home’.Item Open Access Coming out in cancer care: Is disclosure of sexual orientation beneficial?(Royal College of Nursing, 2019-02-13) Fish, Julie; Brown, Jayne; Williamson, I. R.Nurses and other health professionals are to ask about sexual orientation at every face-to-face contact across the NHS from 2019. However, there are concerns about the need for, and relevance of, sexual orientation disclosure and of the potential for discomfort and embarrassment. We conducted qualitative interviews with fifteen lesbian, gay and bisexual patients to investigate how experiences of cancer care are mediated by disclosure. Using thematic analysis, three themes emerged: identifying the barriers to disclosure, approaches to, and facilitators of, coming out, and small actions/big impact: nurses’ responses to disclosure. In conclusion, we situate disclosure within a model of holistic care recognising that patients’ individual needs constitute one of the eight principles of quality nursing. Treating the whole person means that patients are more likely to engage in positive health behaviours, have more knowledge, skills and confidence to manage their health and be more satisfied with their care.Item Metadata only The Complexity of Nurses' Attitudes and Practice of Sedation at the End of Life: A Systematic Literature Review(Journal of Pain and Symptom Management, 2014-05) Abarshi, E. A.; Papavasiliou, E.; Prestn, N.; Brown, Jayne; Payne, S.; EUROIMPACTCONTEXT: Sedation is administered to some palliative care patients at the end of their life. Nurses play an important role in this practice. OBJECTIVES: To systematically review the evidence on nurses' attitudes and practice of end-of-life sedation. METHODS: We searched eight electronic databases, four key palliative care journals, and reference lists for empirical studies published in English, between 1990 and 2012, on nurses and their attitudes toward and practice of sedation until a patient's death. A total of 10 studies met the inclusion criteria. RESULTS: Data were generated from 7515 nurses in four main settings (specialized palliative care unit, home, nursing home, and acute hospital) from seven countries (Belgium, Canada, Japan, The Netherlands, Norway, U.K., and U.S.). On average, the quality of the evidence was good; hence, we analyzed all selected studies. Based on the findings from a previous review, we categorized the emerging themes into: 1) important factors leading to the patient receiving palliative sedation (PS), 2) nurses' attitudes toward PS, and 3) nurses' experience of PS at the end of a patient's life. In general, nurses had a positive but cautious attitude toward the practice of PS. Most saw it as a last resort treatment for relieving suffering and refractory symptoms, and its practice was often influenced by their level of education, expertise, and the roles they played per setting. CONCLUSION: Most nurses administered sedation until death only within the given circumstances because of the anticipatory benefits in controlling refractory symptoms and suffering. Some of them experienced burdens during PS delivery; these could be supported by operational guidelines and task-related trainingItem Metadata only Continuous Sedation (CS) Until Death: Mapping the Literature by Bibliometric Analysis.(Elsevier, 2012) Papavasiliou, E.; Payne, S.; Brearley, S.; Brown, Jayne; Seymour, JaneItem Metadata only Continuous sedation until death: the everyday moral reasoning of physicians, nurses and family caregivers in the UK, The Netherlands and Belgium(BioMed Central, 2014-02) Raus, Kasper; Brown, Jayne; Seale, Clive; Rietjens, Judith; Janssens, Rien; Bruinsma, Sophie; Mortier, Freddy; Payne, Sheila; Sterckx, SigridItem Open Access Development of a tool to support managers in planning and evaluating staff training(Nursing Standard, 2019-06) Padley, Wendy; Long, Jaqui; Welyczko, Nikki; Dowsett, Deborah; Salter, Nick; Ford, Karen; Greenway, Carol; Brown, JayneAim To explore decision-making and evaluation strategies used by healthcare managers in relation to staff training and education, and to develop a tool to support managers with these tasks. Method Using snowball sampling, 30 healthcare managers in a variety of healthcare settings were recruited and interviewed using semi-structured interviews. Data were transcribed and analysed using thematic analysis. Findings Four overarching themes were identified in relation to decision-making regarding staff training: the nature and characteristics of courses relevant to practice; the effect of practice requirements for education and training; staff motivation and interest; and the process of staff selection for training. Managers did not use formal, structured processes to make decisions about staff selection for training, nor to evaluate the outcomes of the training. Instead, they largely relied on their personal experience, knowledge and professional judgements. Based on these findings, the study team developed the Assessment, Planning and Evaluation of Training (APET) tool to support the planning and evaluation of training, and they invited feedback from healthcare managers. Positive feedback suggests that this tool could support managers’ decision-making in relation to planning and evaluating staff training. Conclusion Healthcare managers’ decision-making in relation to the planning and evaluation of staff training relied on judgements based on their personal experience and knowledge. The APET tool developed by the study team has the potential to ensure vital resources such as time and money are used optimally, which would improve outcomes for staff, patients and healthcare organisations.Item Open Access Development of materials to support parents whose babies cry excessively: findings and health service implications(Cambridge University Press, 2018-01-10) Long, Jaqui; Powell, Charlotte; Bamber, Deborah; Garratt, Rosemary; Brown, Jayne; Dyson, Sue; St James-Roberts, IanAim To develop evidence-based materials which provide information and support for parents who are concerned about their baby’s excessive crying. As well as meeting these parents’ needs, the aim was to develop a package of materials suitable for use by the UK National Health Service (NHS). Background Parents report that around 20% of infants in Western countries cry excessively without an apparent reason during the first four months of age. Traditionally, research has focused on the crying and its causes. However, evidence is growing that how parents evaluate and respond to the crying needs to receive equal attention. This focus encompasses parental resources, vulnerabilities, well-being and mental health. At present, the UK NHS lacks a set of routine provisions to support parents who are concerned about their baby’s excessive crying. The rationales, methods and findings from a study developing materials for this purpose are reported. Method Following a literature review, 20 parents whose babies previously cried excessively took part in focus groups or interviews. They provided reports on their experiences and the supports they would have liked when their baby was crying excessively. In addition, they identified their preferred delivery methods and devices for accessing information and rated four example support packages identified by the literature review. Findings During the period their baby cried excessively, most parents visited a health service professional and most considered these direct contacts to have provided helpful information and support. Websites were similarly popular. Telephones and tablets were the preferred means of accessing online information. Groups to meet other parents were considered an important additional resource by all the parents. Three package elements – a Surviving Crying website, a printed version of the website and a programme of Cognitive Behaviour Therapy-based support sessions delivered to parents by a qualified practitioner, were developed for further evaluation.Item Open Access Disclosure in lesbian, gay and bisexual cancer care: towards a salutogenic healthcare environment(Springer Nature, 2019-07-10) Fish, Julie; Brown, Jayne; Williamson, I. R.Background: The literature on sexual orientation disclosure is arguably one of the most developed in the field of lesbian, gay and bisexual (LGB) people in healthcare in English speaking countries however, relatively little research has been conducted into disclosure in cancer care. Studies have been mainly undertaken in primary care where distinct circumstances pertain and where the benefits of disclosure include obtaining appropriate health information, treatment advice and avoiding misdiagnosis. Methods: We conducted an in-depth qualitative study primarily recruiting patients through oncology care in hospital settings and through LGB community cancer support groups. Data were gathered through semi-structured interviews with 30 LGB patients with different cancer types. Results: Data were analysed using thematic analysis and interpreted and interrogated through salutogenesis theory which offers a useful lens through which to consider the health promoting effects of sexual orientation disclosure in cancer care. We present three themes as part of the analysis: Authenticity as a driver for disclosure in cancer care, Partners as a (potential) salutogenic resource and Creating safe, healing environments conducive to disclosure. The findings are reported and discussed in relation to three inter-related concepts from current salutogenesis theorising including a sense of coherence, generalised resistance resources and healing environments which can facilitate sexual orientation disclosure. Conclusion: Our findings enable a more nuanced approach to understanding disclosure in this context. This study contributes to the literature through its articulation of the salutogenic potential of disclosure (if responded to appropriately) for LGB patients as individuals, in relationship to their partners or carers and the role of creating a visible healing-oriented optimal environment to promote quality of life and recovery.Item Metadata only Enhancing learning in care settings: the Profile of Learning Achievements in Care Environments (PLACE) project.(Emerald, 2009) Brown, Jayne; Robb, Yvonne; Duffy, Kathleen; Lowndes, A.Item Embargo An evaluation of routine specialist palliative care for patients on the Liverpool Care Pathway(2014-02-18) Thompson, Jo; Brown, Jayne; Davies, AndrewIntroduction: This report describes a service evaluation of the 'added value' of routine specialist palliative care team (SPCT) involvement with patients on the Liverpool Care Pathway for the Dying Patient (LCP). Methods: In the authors' hospital, patients that are commenced on the LCP are routinely referred to the SPCT. They are reviewed on the day of referral and then at least every other day, depending on the clinical situation. The data for this report was obtained by reviewing the SPCT's clinical database and the patients' LCP proformas. Results: The SPCT intervened in the care of 80% of 158 newly referred patients, e.g. for alteration of continuous subcutaneous infusion (23%) or alteration of use of non-pharmacological interventions (21%). Furthermore, 11% of patients were taken off the LCP, around one quarter of whom were later put back on. Conclusions: The authors' model of care could overcome many of the issues relating to the LCP and would ameliorate the developing vacuum of care for patients at the end of life.Item Open Access An exploration of the experience of using the TENA Pants product compared to usual continence products as perceived by carers of people with dementia in care homes(ESSITY UK Ltd, 2018) Knifton, Chris; Bell, Katie; Padley, Wendy; Brown, JayneAbstract: Incontinence is a common symptom experienced by many older people with dementia, with an increased prevalence noted in care home settings when compared to community dwellings. Incontinence may often be a reason for care home admission. Absorbent continence pads are a common form of intervention with this client group. However, disposable continence pants are becoming more common and TENA Pants are one such example. Research Aim: To understand what are the key product satisfaction indicators for absorbent continence pads; and in light of this review the experience of using the TENA Pants product compared to currently used continence products with people with dementia in care homes. Methods: A review of the literature was undertaken to identify factors reported to affect user experience of absorbent continence pads. These results led to the development of a pre and post carer intervention questionnaire that focused on user satisfaction, which together with a semi-structured interview, reviewed a 4 week user trial of the TENA pull-up pants. Findings: Overall, high satisfaction levels with the product were recorded suggesting this to be a suitable continence product for people with dementia residing in care homes. However, the qualitative data showed that satisfaction with the pads was greatest when used with people in the early and mid-stages of disease progression. Three key factors were found to account for the highest percentage of satisfaction and as such are likely to become key predictor variables for good quality and satisfaction when developing absorbent continence pads for this client group, as well as key points for product development and marketing. These were: • Absorbent pads are comfortable to wear when they are dry • Absorbent pads need to be designed so they can be easily fitted and removed • Absorbent pads need to control odour well • Considerations for further research in this area are also discussed.Item Open Access Facilitators and barriers to early diagnosis of malignant mesothelioma (FILMM): A qualitative study(2022-03-28) Oviasu, Osaretin; Brown, Jayne; Arber, AnnePrognosis with malignant mesothelioma (MM) is poor, yet evidence indicates a better chance of survival at earlier diagnosis. There is a shortage of research to produce evidence based guidance related to patients’ journey to mesothelioma diagnosis, which could be vital in improving earlier diagnosis and ultimately the survival rate. This is particularly important for the UK as the survival rate in the UK is lower than Europe’s average. Although, there has been an attempt to examine MM patients’ referral pathway once they present to a healthcare professional, there has been no study that has examined their entire pathway to diagnosis (i.e. from patient’ symptom awareness to diagnosis). This is particularly relevant at this period as evidence has shown the impact COVID19 has on waiting times to diagnosis for other cancers. There has been little attention to MM patients’ experiences prior to diagnosis (i.e. early symptom awareness, help-seeking decisions and subsequent treatment pathways) as available studies have focused on their lived experiences after diagnosis. It is important to understand how MM patients appraise their symptoms, present to health services with MM symptoms and the speed of the pathway from presentation and referral to diagnosis and treatment.Item Open Access Final Report: Leicester Ageing Together (LAT): Evaluation Report(De Montfort University, 2020-01-06) Hinsliff-Smith, K.; Brown, Jayne; Patel, NainaExecutive Summary According to the Office for National Statics (2018) the UK population has been steadily getting older and this trend is projected to continue. In 2016, there were 11.8 million UK residents aged 65 years and over, representing 18% of the total population – 25 years before, there were 9.1 million, accounting for 15.8% of the population. Linked to these statistics over 9 million people in the UK – almost a fifth of the population – say they are always or often lonely, but almost two thirds feel uncomfortable admitting to it (British Red Cross and Co-Op, 2016) and over half (51%) of all people aged 75 and over live alone (ONS, 2010). The Leicester Ageing Together partnership, known as LAT, has been working since October 2015 to reduce isolation and loneliness in older people in Leicester. So far, they have reached almost 6,000 older people, nearly half of whom were aged 80 years plus. This large and extensive programme recruited over 1,300 volunteers, as well as funding local jobs worth £1.5 million. LAT is part of Ageing Better, a programme set up by The National Lottery Community Fund, the largest funder to date of community activity in the UK. Ageing Better aimed to develop creative ways for older people to be actively involved in their local communities, helping to combat social isolation and loneliness. It was one of five major programmes set up by The National Lottery Community Fund to test and learn from new approaches to designing services which aimed to make people’s lives healthier and happier. This report commissioned by the LAT board in December 2018 was conducted by De Montfort University and reports the findings of a qualitative evaluation conducted at the end of the funding stream for the programme. The evaluation aimed to gauge the views and experiences of beneficiaries, stakeholders and provider organisations who were involved in the delivery of the programme. This evaluation was conducted over a four month period in early 2019 and where possible aimed to gain insights from across a range of ethnic groups, contexts and viewpoints. In total 50 participants shared their experiences of the programme, for which the evaluation team at De Montfort and LAT are extremely grateful. This report should be read with the understanding that the views shared in this report are not necessarily the views of everyone involved in the programme. They are time specific based on hindsight offering a snap shot of views at the end of the programme rather than throughout. The findings relate to data collected over a months in 2019 involving 50 participants who were at the time of data collection actively engaged in an activity as a beneficiary or were delivering programmes as a provider. The majority of the views shared in this report are generated from the 35 older people classed as the LAT programme beneficiaries with a further 15 interviews undertaken with provider and stakeholder organisations. This evaluation did not seek the views of the LAT board members. Ageing Better, the Big Lottery funders or organisations that were no longer offering LAT funded activities. The findings and therefore the recommendations are solely based on the evidence gathered during this evaluation exercise and it would be useful for these to be considered in light of the other extensive evaluations that have been commissioned not just for the Leicester programme but others commissioned across the sector. For example at the time of submitting this final report we understand there is an ongoing national evaluation by the Big Lottery which is anticipated to have cross cutting themes to other local evaluations. It would be wise, therefore, to review these in the context of Leicester and other UK Cities and similar programmes aimed to support loneliness and social isolation amongst older people (those aged over 50) and the communities to which they live. The report findings aim to capture the essence of the LAT programme including highlights, strengths and opportunities for future learning for similar programmes of activity.Item Metadata only From sedation to continuous sedation until death: How has the conceptual basis of sedation in end-of-life care changed over time?(U.S. Cancer Pain Relief Committee, 2013) Papavasiliou, E.; Brearley, S.; Seymour, Jane; Brown, Jayne; Payne, S. A.
- «
- 1 (current)
- 2
- 3
- »